Bill Amendment: IL HB1783 | 2025-2026 | 104th General Assembly
NOTE: For additional amemendments please see the Bill Drafting List
Bill Title: ST BD ED-LANGUAGE ASSESSMENT
Status: 2026-07-30 - Public Act . . . . . . . . . 104-0658 [HB1783 Detail]
Download: Illinois-2025-HB1783-House_Amendment_002.html
Bill Title: ST BD ED-LANGUAGE ASSESSMENT
Status: 2026-07-30 - Public Act . . . . . . . . . 104-0658 [HB1783 Detail]
Download: Illinois-2025-HB1783-House_Amendment_002.html
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| 1 | AMENDMENT TO HOUSE BILL 1783 | ||||||
| 2 | AMENDMENT NO. ______. Amend House Bill 1783 by replacing | ||||||
| 3 | everything after the enacting clause with the following: | ||||||
| 4 | "Section 1. Short title. This Act may be cited as the | ||||||
| 5 | Language Equality Acquisition for Deaf, Hard of Hearing, or | ||||||
| 6 | DeafBlind Children Act. | ||||||
| 7 | Section 5. Findings and goal. | ||||||
| 8 | (a) The General Assembly finds that there is an urgent and | ||||||
| 9 | substantial need to do all of the following: | ||||||
| 10 | (1) Develop a State-recognized language needs and | ||||||
| 11 | monitoring program for deaf, hard of hearing, or DeafBlind | ||||||
| 12 | children with language and communication developmental | ||||||
| 13 | milestones to assist parents, guardians, and educators in | ||||||
| 14 | determining the language and communication needs and goals | ||||||
| 15 | of deaf, hard of hearing, or DeafBlind children. | ||||||
| 16 | (2) End language deprivation in children who are deaf, | ||||||
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| 1 | hard of hearing, or DeafBlind through proper assessment, | ||||||
| 2 | monitoring, and tracking of language and communication | ||||||
| 3 | developmental milestones. | ||||||
| 4 | (3) Provide access to primary languages to be used at | ||||||
| 5 | home, including, but not limited to, American Sign | ||||||
| 6 | Language, English, or Protactile, all of which are | ||||||
| 7 | essential in the development of cognition, communication, | ||||||
| 8 | literacy, and language in deaf, hard of hearing, or | ||||||
| 9 | DeafBlind children and in enhancing preschool and | ||||||
| 10 | kindergarten readiness. | ||||||
| 11 | (4) Maximize resources associated with early | ||||||
| 12 | intervention services by ensuring deaf, hard of hearing, | ||||||
| 13 | and DeafBlind children have the necessary language | ||||||
| 14 | foundation to communicate, learn, and achieve their | ||||||
| 15 | maximum potential. | ||||||
| 16 | (5) Enhance deaf, hard of hearing, or DeafBlind, | ||||||
| 17 | children's independence, linguistic proficiency, | ||||||
| 18 | productivity, and socialization with peers, family, and | ||||||
| 19 | the community, as well as maximize the potential for these | ||||||
| 20 | children to thrive in childhood, adolescence, and | ||||||
| 21 | adulthood. | ||||||
| 22 | (b) The General Assembly declares that the goal of this | ||||||
| 23 | State is for deaf, hard of hearing, or DeafBlind children to | ||||||
| 24 | enter public and nonpublic schools in this State prepared for | ||||||
| 25 | learning, able to communicate with peers and staff, and with | ||||||
| 26 | access to resources to help these children succeed. | ||||||
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| 1 | Section 10. Definitions. As used in this Act: | ||||||
| 2 | "Advisory committee" means the advisory committee | ||||||
| 3 | established under Section 25. | ||||||
| 4 | "American Sign Language" means a complete, visual, and | ||||||
| 5 | manual sign language with its own grammar and syntax that is | ||||||
| 6 | used by many deaf or hard of hearing individuals. | ||||||
| 7 | "Communication" means the process of exchanging | ||||||
| 8 | information between individuals or groups that involves the | ||||||
| 9 | transmission of ideas, feelings, or facts from one person, the | ||||||
| 10 | sender, to another, the receiver, and may be verbal or | ||||||
| 11 | nonverbal and plays a crucial role in human interaction. | ||||||
| 12 | "DeafBlind" means concomitant hearing and vision | ||||||
| 13 | impairments, the combination of which causes such significant | ||||||
| 14 | communication, developmental, or educational needs that they | ||||||
| 15 | cannot be accommodated solely for children with deafness or | ||||||
| 16 | low-vision blindness. | ||||||
| 17 | "English" means a method of human communication consisting | ||||||
| 18 | of the use of English words in a structured and conventional | ||||||
| 19 | way, including spoken English, written English, and English | ||||||
| 20 | with or without the use of visual or tactile supplements or | ||||||
| 21 | dual language services. | ||||||
| 22 | "English literacy" means the ability to read and write in | ||||||
| 23 | English. | ||||||
| 24 | "Kindergarten readiness" means language, communication, | ||||||
| 25 | early reading and math literacy, and social skills development | ||||||
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| 1 | for each language of the home that is consistent with | ||||||
| 2 | age-related peers by kindergarten. | ||||||
| 3 | "Language" means the age-appropriate development of human | ||||||
| 4 | communication, spoken, written, or signed, consisting of the | ||||||
| 5 | use of words and signs in a structured and conventional way. | ||||||
| 6 | "Language and communication developmental milestones" | ||||||
| 7 | means milestones of development measured by validated | ||||||
| 8 | instruments used to meet the requirements of federal law for | ||||||
| 9 | the assessment of children from birth to 5 years of age. | ||||||
| 10 | "Protactile" means the value of touch-based interactions | ||||||
| 11 | for the purposes of communication for individuals who are | ||||||
| 12 | DeafBlind that has its own grammar and syntax and that allows | ||||||
| 13 | for individuals to connect with the world around them and | ||||||
| 14 | fosters greater independence for those with multisensory | ||||||
| 15 | impairments. | ||||||
| 16 | Section 15. Applicability. | ||||||
| 17 | (a) This Act applies to children from birth to 5 years of | ||||||
| 18 | age. | ||||||
| 19 | (b) This Act is subject to appropriation. | ||||||
| 20 | Section 20. Language needs and monitoring program for | ||||||
| 21 | deaf, hard of hearing, or DeafBlind children. | ||||||
| 22 | (a) The Department of Human Services, in consultation with | ||||||
| 23 | the Illinois School for the Deaf, the Deaf and Hard of Hearing | ||||||
| 24 | Commission, the Department of Early Childhood, the State Board | ||||||
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| 1 | of Education, and the Department of Public Health, shall | ||||||
| 2 | establish a language needs and monitoring program for deaf, | ||||||
| 3 | hard of hearing, or DeafBlind children. The scope of the | ||||||
| 4 | program shall include language and communication developmental | ||||||
| 5 | milestones in American Sign Language, English, Protactile, or | ||||||
| 6 | the primary language used in the home. The purpose of the | ||||||
| 7 | program is to assess, monitor, and track the language and | ||||||
| 8 | communication developmental milestones of children who are | ||||||
| 9 | deaf, hard of hearing, or DeafBlind and develop a resource for | ||||||
| 10 | use by parents and guardians to monitor and support deaf, hard | ||||||
| 11 | of hearing, or DeafBlind children's expressive and receptive | ||||||
| 12 | language acquisition and developmental stages toward English | ||||||
| 13 | literacy and kindergarten readiness. | ||||||
| 14 | (b) The resource developed under subsection (a) shall: | ||||||
| 15 | (1) consider the language and communication | ||||||
| 16 | developmental milestones recommended by the advisory | ||||||
| 17 | committee; | ||||||
| 18 | (2) be appropriate for use, in both content and | ||||||
| 19 | administration, with deaf, hard of hearing, or DeafBlind | ||||||
| 20 | children who use American Sign Language, English, | ||||||
| 21 | Protactile, or the primary language used in the home; | ||||||
| 22 | (3) include and present evidence-based language and | ||||||
| 23 | communication developmental milestones for typically | ||||||
| 24 | developing children, by age range; language and | ||||||
| 25 | communication development milestones shall be aligned with | ||||||
| 26 | this State's infant, toddler, preschool-age, and | ||||||
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| 1 | school-age guidelines, as well as federal laws and State | ||||||
| 2 | standards in English language arts and related programs; | ||||||
| 3 | (4) be provided in English, American Sign Language, | ||||||
| 4 | Protactile, and the primary language used in the home for | ||||||
| 5 | clarity and ease of use by parents, guardians, health care | ||||||
| 6 | professionals, interventionists, and educators; | ||||||
| 7 | (5) be consistent with State and federal guidelines on | ||||||
| 8 | early intervention, identification, diagnosis, and early | ||||||
| 9 | childhood education; | ||||||
| 10 | (6) inform parents and guardians of their right to | ||||||
| 11 | choose their preferred language that will be used to | ||||||
| 12 | communicate and provide a language-rich learning | ||||||
| 13 | environment for their child, including English, American | ||||||
| 14 | Sign Language, Protactile, or the primary language used in | ||||||
| 15 | the home; | ||||||
| 16 | (7) inform parents and guardians that they may bring | ||||||
| 17 | the resource to an individualized family service plan, | ||||||
| 18 | individualized education program, or federal Section 504 | ||||||
| 19 | plan meeting for purposes of supporting their choices and | ||||||
| 20 | observations regarding their child's language and | ||||||
| 21 | communication development; the resource shall include | ||||||
| 22 | evidence-based and comprehensive information about | ||||||
| 23 | American Sign Language, English, Protactile, or the | ||||||
| 24 | primary language used in the home, as well as available | ||||||
| 25 | services and programs; and | ||||||
| 26 | (8) make clear that the resource is a checklist of | ||||||
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| 1 | language and communication developmental milestones that | ||||||
| 2 | has been created from evidence-based resources and | ||||||
| 3 | completed by a parent or guardian and professionals | ||||||
| 4 | together and may have similarities and differences from | ||||||
| 5 | standardized testing presented at an individualized family | ||||||
| 6 | service plan, individualized education program, or federal | ||||||
| 7 | Section 504 plan meeting; the parent or guardian shall be | ||||||
| 8 | made aware that the school district is not required to use | ||||||
| 9 | the resources, language and communication developmental | ||||||
| 10 | milestones, or specific assessments in this subsection and | ||||||
| 11 | subsection (a) that are recommended by the advisory | ||||||
| 12 | committee for the purpose of developing the individualized | ||||||
| 13 | family service plan, individualized education program, or | ||||||
| 14 | federal Section 504 plan. | ||||||
| 15 | (c) The Department of Human Services, in consultation with | ||||||
| 16 | the Illinois School for the Deaf, the Deaf and Hard of Hearing | ||||||
| 17 | Commission, the Department of Early Childhood, the State Board | ||||||
| 18 | of Education, and the Department of Public Health, shall | ||||||
| 19 | consult with subject matter experts on the advisory committee | ||||||
| 20 | in selecting from lists of validated tools or assessments for | ||||||
| 21 | interventionists and educators to be used in the assessment of | ||||||
| 22 | language, communication, and preliteracy development for deaf, | ||||||
| 23 | hard of hearing, or DeafBlind children, in accordance with | ||||||
| 24 | assessment requirements under the federal Individuals with | ||||||
| 25 | Disabilities Education Act and Section 10-65 of the Department | ||||||
| 26 | of Early Childhood Act. The selection of the tools or | ||||||
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| 1 | assessments shall: | ||||||
| 2 | (1) be in a format that shows language and | ||||||
| 3 | communication developmental milestones; | ||||||
| 4 | (2) take into consideration the recommendations of the | ||||||
| 5 | advisory committee to measure the development of deaf, | ||||||
| 6 | hard of hearing, or DeafBlind children's expressive and | ||||||
| 7 | receptive language acquisition and language and | ||||||
| 8 | communication developmental milestones toward literacy; | ||||||
| 9 | (3) be selected from a list of tools or assessments | ||||||
| 10 | used to assess the development of all children; and | ||||||
| 11 | (4) be appropriate, in both content and | ||||||
| 12 | administration, for use with deaf, hard of hearing, or | ||||||
| 13 | DeafBlind children. | ||||||
| 14 | The tools or assessments may be used, in addition to the | ||||||
| 15 | assessments required by federal law, by a child's | ||||||
| 16 | individualized family service plan or individualized education | ||||||
| 17 | program, as applicable, to track a deaf, hard of hearing, or | ||||||
| 18 | DeafBlind child's progress and to establish or modify an | ||||||
| 19 | individualized family service plan or individualized education | ||||||
| 20 | program. Children with federal Section 504 plans shall be | ||||||
| 21 | assessed to ensure appropriate services are provided. The | ||||||
| 22 | tools or assessments may reflect the recommendations of the | ||||||
| 23 | advisory committee. | ||||||
| 24 | (d) The Department of Human Services, in consultation with | ||||||
| 25 | the Illinois School for the Deaf, the Deaf and Hard of Hearing | ||||||
| 26 | Commission, the Department of Early Childhood, the State Board | ||||||
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| 1 | of Education, and the Department of Public Health, shall | ||||||
| 2 | disseminate the resource developed under subsection (a) to the | ||||||
| 3 | parents or guardians of deaf, hard of hearing, or DeafBlind | ||||||
| 4 | children and, pursuant to federal law, the Department of Human | ||||||
| 5 | Services shall disseminate the tools and assessments selected | ||||||
| 6 | under subsection (c) to early intervention entities and school | ||||||
| 7 | districts for consideration in the development and | ||||||
| 8 | modification of individualized family service plans, | ||||||
| 9 | individualized education programs, and federal Section 504 | ||||||
| 10 | plans. | ||||||
| 11 | (e) The Department of Human Services shall make available | ||||||
| 12 | to parents and guardians materials and training on the tools, | ||||||
| 13 | assessments, and resources for deaf, hard of hearing, or | ||||||
| 14 | DeafBlind children. | ||||||
| 15 | (f) Beginning on July 1, 2028, an annual language | ||||||
| 16 | assessment shall be offered to the parent or guardian of each | ||||||
| 17 | child who is deaf, hard of hearing, or DeafBlind, in | ||||||
| 18 | accordance with the federal Individuals with Disabilities | ||||||
| 19 | Education Act and Section 10-65 of the Department of Early | ||||||
| 20 | Childhood Act. The language assessment shall be administered | ||||||
| 21 | by a credentialed or licensed professional who meets the | ||||||
| 22 | qualifications established by the test developer and | ||||||
| 23 | demonstrates proficiency in the language being assessed. | ||||||
| 24 | A deaf, hard of hearing, or DeafBlind newborn child shall | ||||||
| 25 | be screened by the time the child turns one month old, | ||||||
| 26 | diagnosed no later than 3 months of age, and referred to an | ||||||
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| 1 | early intervention program by the time the child turns 6 | ||||||
| 2 | months old. Following the referral to an early intervention | ||||||
| 3 | program, the initial evaluation, assessment, and | ||||||
| 4 | individualized family service plan meeting shall occur within | ||||||
| 5 | 45 days. Services shall begin no later than 30 days after the | ||||||
| 6 | consent of the parent or guardian is obtained as required by | ||||||
| 7 | the federal Individuals with Disabilities Education Act and | ||||||
| 8 | Section 10-65 of the Department of Early Childhood Act. | ||||||
| 9 | A deaf, hard of hearing, or DeafBlind child with late | ||||||
| 10 | onset hearing loss shall be diagnosed no later than 3 months | ||||||
| 11 | after a suspected hearing loss and immediately referred to | ||||||
| 12 | services after diagnosis. | ||||||
| 13 | If a deaf, hard of hearing, or DeafBlind child is referred | ||||||
| 14 | to an early intervention program, a formal assessment shall be | ||||||
| 15 | offered, in person or virtually, by a developmental | ||||||
| 16 | therapist-hearing or discipline-specific credentialed | ||||||
| 17 | provider upon program entry and at yearly intervals, in | ||||||
| 18 | accordance with the federal Individuals with Disabilities | ||||||
| 19 | Education Act and Section 10-65 of the Department of Early | ||||||
| 20 | Childhood Act. Developmental therapists-hearing and | ||||||
| 21 | discipline-specific credentialed providers shall be expected | ||||||
| 22 | to refer out as appropriate for children whose primary | ||||||
| 23 | language is American Sign Language or Protactile to ensure | ||||||
| 24 | assessments of children are completed by individuals with the | ||||||
| 25 | ability to accurately conduct such assessments. | ||||||
| 26 | A deaf, hard of hearing, or DeafBlind child entering | ||||||
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| 1 | school with an individualized education program or federal | ||||||
| 2 | Section 504 plan shall receive a formal assessment implemented | ||||||
| 3 | by a licensed teacher of the deaf or discipline-specific | ||||||
| 4 | licensed teacher. Licensed teachers of the deaf or | ||||||
| 5 | discipline-specific licensed teachers shall be expected to | ||||||
| 6 | refer out as appropriate for children whose primary language | ||||||
| 7 | is American Sign Language or Protactile to ensure assessments | ||||||
| 8 | of children are completed by those individuals with the | ||||||
| 9 | ability to accurately conduct such assessments. | ||||||
| 10 | The advisory committee shall recommend the criteria that | ||||||
| 11 | may be used to identify those individuals who are qualified to | ||||||
| 12 | conduct accurate American Sign Language or Protactile | ||||||
| 13 | assessments. | ||||||
| 14 | In accordance with the federal Individuals with | ||||||
| 15 | Disabilities Education Act and Section 10-65 of the Department | ||||||
| 16 | of Early Childhood Act, if a deaf, hard of hearing, or | ||||||
| 17 | DeafBlind child does not demonstrate progress in expressive | ||||||
| 18 | and receptive language skills, the child's individualized | ||||||
| 19 | family service plan, individualized education program, or | ||||||
| 20 | federal Section 504 plan team shall be responsible for | ||||||
| 21 | identifying areas not meeting or progressing toward the | ||||||
| 22 | language and communication developmental milestones. Data | ||||||
| 23 | collected on children with disabilities in addition to hearing | ||||||
| 24 | loss, nonnative English speakers, and children with unilateral | ||||||
| 25 | or bilateral hearing loss shall be extrapolated and analyzed | ||||||
| 26 | independently to ensure data efficacy is not compromised. The | ||||||
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| 1 | individualized family service plan, individualized education | ||||||
| 2 | program, or federal Section 504 plan team, including the | ||||||
| 3 | parents or guardians, shall consider specific strategies, | ||||||
| 4 | services, and programs to assist the child's success toward | ||||||
| 5 | learning the child's parent's or guardian's preferred | ||||||
| 6 | language. A follow-up meeting shall be scheduled within 30 to | ||||||
| 7 | 60 days or as deemed appropriate by the individualized family | ||||||
| 8 | service plan, individualized education program, or federal | ||||||
| 9 | Section 504 plan team to determine the effects of the | ||||||
| 10 | recommendations. | ||||||
| 11 | (g) All activities in implementing this Section shall be | ||||||
| 12 | consistent with federal and State law regarding the education | ||||||
| 13 | of children with disabilities and the privacy of pupil | ||||||
| 14 | information. | ||||||
| 15 | Section 25. Advisory committee. | ||||||
| 16 | (a) An advisory committee on language needs and monitoring | ||||||
| 17 | shall be established. The advisory committee shall be composed | ||||||
| 18 | of subject matter experts, consumers, and parents or guardians | ||||||
| 19 | supporting deaf, hard of hearing, or DeafBlind children. | ||||||
| 20 | (b) The advisory committee shall consist of all of the | ||||||
| 21 | following voting members, each appointed by the Secretary of | ||||||
| 22 | Human Services, in consultation with the Illinois School for | ||||||
| 23 | the Deaf and the Deaf and Hard of Hearing Commission: | ||||||
| 24 | (1) One parent or guardian of a child who (i) is 18 | ||||||
| 25 | years of age or younger at the time of the appointment, | ||||||
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| 1 | (ii) is deaf, hard of hearing, or DeafBlind, and (iii) | ||||||
| 2 | uses the dual languages of American Sign Language and | ||||||
| 3 | English. | ||||||
| 4 | (2) One parent or guardian of a child who (i) is 18 | ||||||
| 5 | years of age or younger at the time of the appointment, | ||||||
| 6 | (ii) is deaf, hard of hearing, or DeafBlind, and (iii) | ||||||
| 7 | uses primarily spoken English, without sign support. | ||||||
| 8 | (3) One expert on language outcomes for deaf and hard | ||||||
| 9 | of hearing children who use American Sign Language and the | ||||||
| 10 | English language. | ||||||
| 11 | (4) One licensed teacher of deaf and hard of hearing | ||||||
| 12 | children from a spoken English-only school or one expert | ||||||
| 13 | on language outcomes for deaf and hard of hearing children | ||||||
| 14 | using spoken English, with or without visual supplements. | ||||||
| 15 | (5) One licensed teacher of deaf and hard of hearing | ||||||
| 16 | children whose expertise is in curriculum and instruction | ||||||
| 17 | in American Sign Language and English, with or without | ||||||
| 18 | visual supplements, or one licensed teacher of deaf and | ||||||
| 19 | hard of hearing children whose expertise is in American | ||||||
| 20 | Sign Language and English language assessments, with or | ||||||
| 21 | without visual supplements. | ||||||
| 22 | (6) A psychologist with expertise in assessing deaf | ||||||
| 23 | and hard of hearing children who use or are fluent in | ||||||
| 24 | American Sign Language and English. | ||||||
| 25 | (7) One developmental therapist-hearing who works with | ||||||
| 26 | deaf and hard of hearing infants and toddlers who use the | ||||||
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| 1 | dual languages of American Sign Language and the English | ||||||
| 2 | language. | ||||||
| 3 | (8) One licensed speech-language pathologist who has | ||||||
| 4 | expertise in working with children and who uses listening | ||||||
| 5 | and spoken language methodologies. | ||||||
| 6 | (9) One licensed speech-language pathologist who has | ||||||
| 7 | expertise in working with children who use American Sign | ||||||
| 8 | Language. | ||||||
| 9 | (10) One deaf person who represents the deaf | ||||||
| 10 | community. | ||||||
| 11 | (11) One DeafBlind individual, specialist, or educator | ||||||
| 12 | whose expertise is in DeafBlind advocacy or education. | ||||||
| 13 | (12) One licensed teacher of deaf and hard of hearing | ||||||
| 14 | children who also has significant experience in working | ||||||
| 15 | with deaf, hard of hearing, or DeafBlind children with | ||||||
| 16 | other educational disabilities. | ||||||
| 17 | (13) One licensed pediatric audiologist with working | ||||||
| 18 | knowledge of American Sign Language and English. | ||||||
| 19 | (c) The advisory committee shall consist of all of the | ||||||
| 20 | following ex officio, nonvoting members: | ||||||
| 21 | (1) The State Superintendent of Education or the State | ||||||
| 22 | Superintendent's designee. | ||||||
| 23 | (2) The Director of the Deaf and Hard of Hearing | ||||||
| 24 | Commission or the Director's designee. | ||||||
| 25 | (3) The Secretary of Early Childhood or the | ||||||
| 26 | Secretary's designee. | ||||||
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| 1 | (4) The Director of Public Health or the Director's | ||||||
| 2 | designee. | ||||||
| 3 | (5) The Superintendent of the Illinois School for the | ||||||
| 4 | Deaf or the Superintendent's designee. | ||||||
| 5 | (6) The Secretary of Human Services or the Secretary's | ||||||
| 6 | designee. | ||||||
| 7 | The ex officio, nonvoting members shall provide support to | ||||||
| 8 | the advisory committee. | ||||||
| 9 | (d) The Secretary of Human Services, in consultation with | ||||||
| 10 | the Illinois School for the Deaf and the Deaf and Hard of | ||||||
| 11 | Hearing Commission, shall select a chairperson from among the | ||||||
| 12 | voting appointed members. The Department of Human Services | ||||||
| 13 | shall call an inaugural meeting of the advisory committee | ||||||
| 14 | within 120 days of the effective date of this Act. The advisory | ||||||
| 15 | committee may meet at any time in person or virtually at the | ||||||
| 16 | call of the chairperson. | ||||||
| 17 | (e) Members of the advisory committee shall serve without | ||||||
| 18 | compensation or travel reimbursement. Communication access | ||||||
| 19 | accommodations, such as interpreters and captioning, must be | ||||||
| 20 | provided at all meetings to ensure full participation. | ||||||
| 21 | (f) A quorum of the advisory committee shall consist of a | ||||||
| 22 | simple majority of the members of the advisory committee, | ||||||
| 23 | voting and nonvoting. All actions and recommendations of the | ||||||
| 24 | advisory committee must be approved by an advisory committee | ||||||
| 25 | vote of the members appointed. | ||||||
| 26 | (g) Any vacancy in the advisory committee shall be filled | ||||||
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| 1 | in the same manner as the original appointment. | ||||||
| 2 | (h) The Department of Human Services shall provide the | ||||||
| 3 | advisory committee with administrative support. | ||||||
| 4 | (i) On or before December 31, 2027, the advisory committee | ||||||
| 5 | shall submit to the Department of Human Services specific, | ||||||
| 6 | recommended action plans, timelines, anticipated costs, and | ||||||
| 7 | proposed rules necessary to fully implement language and | ||||||
| 8 | communication tools, assessments, and resources. The advisory | ||||||
| 9 | committee may: | ||||||
| 10 | (1) solicit input from experts on the selection of | ||||||
| 11 | language and communication developmental milestones | ||||||
| 12 | related to the resources, tools, and assessments; | ||||||
| 13 | (2) review and monitor the use of language and | ||||||
| 14 | communication assessments for children who are deaf, hard | ||||||
| 15 | of hearing, or DeafBlind; | ||||||
| 16 | (3) recommend criteria for qualified American Sign | ||||||
| 17 | Language and English experts who can support the initial | ||||||
| 18 | and periodic individualized family service plan, | ||||||
| 19 | individualized education program, or federal Section 504 | ||||||
| 20 | plan team meetings; and | ||||||
| 21 | (4) recommend methods for documenting, monitoring, and | ||||||
| 22 | submitting to all State agencies, child-specific | ||||||
| 23 | information on language and communication assessment | ||||||
| 24 | results, language and communication developmental | ||||||
| 25 | milestones, assessment tools, and the progress of a child. | ||||||
| 26 | The periodic assessment results and longitudinal progress | ||||||
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| 1 | ultimately implemented by the Department of Human Services, | ||||||
| 2 | considering the recommendations of the advisory committee and | ||||||
| 3 | in consultation with the Deaf and Hard of Hearing Commission, | ||||||
| 4 | the Department of Early Childhood, the State Board of | ||||||
| 5 | Education, and the Department of Public Health, shall be made | ||||||
| 6 | available on the child-specific level to each State agency and | ||||||
| 7 | to the parent or guardian of the child, teachers, and other | ||||||
| 8 | professionals involved in the early intervention and education | ||||||
| 9 | of the child. | ||||||
| 10 | (j) The specific recommended action plans and proposed | ||||||
| 11 | rules developed by the advisory committee shall include, but | ||||||
| 12 | are not limited to, all of the following: | ||||||
| 13 | (1) Language and communication assessments that | ||||||
| 14 | include child-specific data collection and timely tracking | ||||||
| 15 | in a statewide data system of a child's development to | ||||||
| 16 | provide information about the child's receptive and | ||||||
| 17 | expressive language compared to the child's typically | ||||||
| 18 | developing, age-related peers who are not deaf, hard of | ||||||
| 19 | hearing, or DeafBlind. | ||||||
| 20 | (2) Language and communication assessments conducted | ||||||
| 21 | in accordance with the federal Individuals with | ||||||
| 22 | Disabilities Education Act and Section 10-65 of the | ||||||
| 23 | Department of Early Childhood Act, as well as standardized | ||||||
| 24 | procedures and timelines to monitor and track language and | ||||||
| 25 | communication developmental milestones in both receptive | ||||||
| 26 | and expressive language acquisition by language and | ||||||
| |||||||
| |||||||
| 1 | communication developmental milestones toward | ||||||
| 2 | kindergarten readiness for all children who are deaf, hard | ||||||
| 3 | of hearing, or DeafBlind. | ||||||
| 4 | (3) Language and communication assessments delivered | ||||||
| 5 | in American Sign Language, English, Protactile, or the | ||||||
| 6 | primary language used in the home that have been validated | ||||||
| 7 | for the specific purposes for which each assessment is | ||||||
| 8 | used and appropriately normed. | ||||||
| 9 | Language and communication assessments shall be | ||||||
| 10 | administered by individuals who are proficient and have | ||||||
| 11 | expertise in the language and communication developmental | ||||||
| 12 | stages of American Sign Language, English, Protactile, or the | ||||||
| 13 | primary language used in the home. | ||||||
| 14 | Language and communication assessment results may be used | ||||||
| 15 | to guide individualized family service plan, individualized | ||||||
| 16 | education program, or federal Section 504 plan teams for the | ||||||
| 17 | purpose of reviewing a child's progress in language and | ||||||
| 18 | communication development. | ||||||
| 19 | Language and communication assessment results shall be | ||||||
| 20 | reported to the parent or guardian of a child. Child-specific | ||||||
| 21 | data, in accordance with federal and State laws, shall be | ||||||
| 22 | reported to the Department of Human Services, which shall | ||||||
| 23 | ensure it is available to appropriate staff at the Deaf and | ||||||
| 24 | Hard of Hearing Commission, the Department of Early Childhood, | ||||||
| 25 | the State Board of Education, and the Department of Public | ||||||
| 26 | Health. One designated State agency shall publish annual | ||||||
| |||||||
| |||||||
| 1 | reports related to this Act. | ||||||
| 2 | Language and communication assessment results shall be | ||||||
| 3 | reported annually to the child's individualized family service | ||||||
| 4 | plan, individualized education program, or federal Section 504 | ||||||
| 5 | plan team to assist the individualized family service plan, | ||||||
| 6 | individualized education program, or federal Section 504 plan | ||||||
| 7 | team in ensuring that appropriate language and communication | ||||||
| 8 | development remains a priority and continues to be monitored. | ||||||
| 9 | (k) This Section is repealed on January 1, 2028. | ||||||
| 10 | Section 30. Joint action plan on deaf, hard of hearing, or | ||||||
| 11 | DeafBlind children. On or before July 1, 2028, the Department | ||||||
| 12 | of Human Services, in consultation with the Illinois School | ||||||
| 13 | for the Deaf, the Deaf and Hard of Hearing Commission, the | ||||||
| 14 | Department of Early Childhood, the State Board of Education, | ||||||
| 15 | and the Department of Public Health, shall publish a joint | ||||||
| 16 | action plan that considers the recommendations of the advisory | ||||||
| 17 | committee and may propose legislation and rules necessary to | ||||||
| 18 | implement this Act. The joint action plan may include | ||||||
| 19 | recommendations on all of the following: | ||||||
| 20 | (1) Evidence-based and research-supported tools to | ||||||
| 21 | help identify deaf, hard of hearing, or DeafBlind | ||||||
| 22 | children. | ||||||
| 23 | (2) The development of evidence-based resources and | ||||||
| 24 | training for parents, guardians, health care providers, | ||||||
| 25 | interventionists, and educators about State resources | ||||||
| |||||||
| |||||||
| 1 | available to deaf, hard of hearing, or DeafBlind children | ||||||
| 2 | of school age. | ||||||
| 3 | (3) Ways to connect deaf, hard of hearing, or | ||||||
| 4 | DeafBlind adults with families supporting children in need | ||||||
| 5 | of support. | ||||||
| 6 | (4) Training and resources for physicians and other | ||||||
| 7 | health care providers on how to connect deaf, hard of | ||||||
| 8 | hearing, or DeafBlind children and their parents or | ||||||
| 9 | guardians to resources and support. | ||||||
| 10 | Section 35. Reporting. On or before January 1, 2030 or 2 | ||||||
| 11 | years after the tools and assessments under Section 20 are | ||||||
| 12 | implemented, whichever is later, the Department of Human | ||||||
| 13 | Services, in consultation with the Illinois School for the | ||||||
| 14 | Deaf, the Deaf and Hard of Hearing Commission, the Department | ||||||
| 15 | of Early Childhood, the State Board of Education, and the | ||||||
| 16 | Department of Public Health, shall publish aggregate | ||||||
| 17 | deidentified data on (i) the number of children from birth to 3 | ||||||
| 18 | years of age who have been diagnosed as deaf, hard of hearing, | ||||||
| 19 | or DeafBlind, (ii) the number and scope of individualized | ||||||
| 20 | education programs written for children aged 3 to 5 years who | ||||||
| 21 | are enrolled in public preschool programs and who are deaf, | ||||||
| 22 | hard of hearing, or DeafBlind, and (iii) the number and scope | ||||||
| 23 | of individualized education programs for children in | ||||||
| 24 | kindergarten and first grade who are deaf, hard of hearing, or | ||||||
| 25 | DeafBlind. The Department of Human Services, in consultation | ||||||
| |||||||
| |||||||
| 1 | with the Illinois School for the Deaf, the Deaf and Hard of | ||||||
| 2 | Hearing Commission, the Department of Early Childhood, the | ||||||
| 3 | State Board of Education, and the Department of Public Health, | ||||||
| 4 | may add additional data reporting recommendations. The data | ||||||
| 5 | must be shared within the requirements of the federal Family | ||||||
| 6 | Educational Rights and Privacy Act of 1974, the Illinois | ||||||
| 7 | School Student Records Act, and the Personal Information | ||||||
| 8 | Protection Act. | ||||||
| 9 | Section 40. Information sharing. | ||||||
| 10 | (a) For the purposes of documentation and the coordination | ||||||
| 11 | of medical care, intervention, or educational services, the | ||||||
| 12 | Department of Human Services, the Illinois School for the | ||||||
| 13 | Deaf, the Deaf and Hard of Hearing Commission, the Department | ||||||
| 14 | of Early Childhood, the State Board of Education, and the | ||||||
| 15 | Department of Public Health may, after obtaining consent, | ||||||
| 16 | share screening, diagnosis, intervention, education, | ||||||
| 17 | assessment, and monitoring information with other State | ||||||
| 18 | agencies or a child's parent or guardian. | ||||||
| 19 | (b) For the purposes of documentation and the coordination | ||||||
| 20 | of medical care, intervention, or educational services, the | ||||||
| 21 | Department of Human Services, the Illinois School for the | ||||||
| 22 | Deaf, the Deaf and Hard of Hearing Commission, the Department | ||||||
| 23 | of Early Childhood, the State Board of Education, and the | ||||||
| 24 | Department of Public Health may, after obtaining consent, | ||||||
| 25 | share screening, diagnosis, intervention, education, | ||||||
| |||||||
| |||||||
| 1 | assessment, and monitoring information in accordance with | ||||||
| 2 | applicable State and federal laws. Medical care facilities, | ||||||
| 3 | health care providers, early interventionists, local health | ||||||
| 4 | departments, and the University of Illinois at Chicago | ||||||
| 5 | Division of Specialized Care for Children may submit relevant | ||||||
| 6 | information or reports about newborn, infant, and child | ||||||
| 7 | screening, diagnosis, intervention, education, assessment, or | ||||||
| 8 | follow-up services for those services provided. To the extent | ||||||
| 9 | practicable, reporting shall be done as soon as possible after | ||||||
| 10 | the date of service or an inquiry from a State agency. Reports | ||||||
| 11 | shall be in a format determined by the reporting State agency. | ||||||
| 12 | (c) The Department of Human Services, in consultation with | ||||||
| 13 | the Illinois School for the Deaf, the Deaf and Hard of Hearing | ||||||
| 14 | Commission, the Department of Early Childhood, the State Board | ||||||
| 15 | of Education, and the Department of Public Health, may | ||||||
| 16 | exchange, in adherence with confidentiality and nondisclosure | ||||||
| 17 | requirements, child-specific data for children who are deaf, | ||||||
| 18 | hard of hearing, or DeafBlind only in order to support | ||||||
| 19 | children and their families and assist in the transition and | ||||||
| 20 | continuity of care and for the purposes of this Act. | ||||||
| 21 | (d) Except in cases of willful or wanton misconduct, no | ||||||
| 22 | health care provider, hospital, or medical facility acting in | ||||||
| 23 | compliance with this Section is civilly or criminally liable | ||||||
| 24 | for any act performed in compliance with this Section, | ||||||
| 25 | including furnishing information required under this Section. | ||||||
| |||||||
| |||||||
| 1 | Section 90. Rulemaking. The Department of Human Services, | ||||||
| 2 | in consultation with the Illinois School for the Deaf, the | ||||||
| 3 | Deaf and Hard of Hearing Commission, the Department of Early | ||||||
| 4 | Childhood, the State Board of Education, and the Department of | ||||||
| 5 | Public Health, may adopt any rules necessary to implement this | ||||||
| 6 | Act. | ||||||
| 7 | Section 99. Effective date. This Act takes effect upon | ||||||
| 8 | becoming law.". | ||||||
