Bill Amendment: IL HB1783 | 2025-2026 | 104th General Assembly
NOTE: For additional amemendments please see the Bill Drafting List
Bill Title: ST BD ED-LANGUAGE ASSESSMENT
Status: 2026-07-30 - Public Act . . . . . . . . . 104-0658 [HB1783 Detail]
Download: Illinois-2025-HB1783-House_Amendment_001.html
Bill Title: ST BD ED-LANGUAGE ASSESSMENT
Status: 2026-07-30 - Public Act . . . . . . . . . 104-0658 [HB1783 Detail]
Download: Illinois-2025-HB1783-House_Amendment_001.html
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| 1 | AMENDMENT TO HOUSE BILL 1783 | ||||||
| 2 | AMENDMENT NO. ______. Amend House Bill 1783 by replacing | ||||||
| 3 | everything after the enacting clause with the following: | ||||||
| 4 | "Section 1. Short title. This Act may be cited as the | ||||||
| 5 | Language Equality Acquisition for Deaf, Hard of Hearing, and | ||||||
| 6 | DeafBlind Children Act. | ||||||
| 7 | Section 5. Findings and goal. | ||||||
| 8 | (a) The General Assembly finds that there is an urgent and | ||||||
| 9 | substantial need to do all of the following: | ||||||
| 10 | (1) Develop a State-recognized, language needs and | ||||||
| 11 | monitoring program for deaf, hard of hearing, and | ||||||
| 12 | DeafBlind infants, toddlers, and children with language | ||||||
| 13 | milestones to assist parents, guardians, and educators in | ||||||
| 14 | determining the language and communication needs and goals | ||||||
| 15 | of deaf, hard of hearing, and DeafBlind infants, toddlers, | ||||||
| 16 | and children. | ||||||
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| 1 | (2) End language deprivation in children who are deaf, | ||||||
| 2 | hard of hearing, and DeafBlind through proper assessment, | ||||||
| 3 | monitoring, and tracking of developmental language and | ||||||
| 4 | communication milestones. | ||||||
| 5 | (3) Provide access to language such as, but not | ||||||
| 6 | limited to, American Sign Language, English, the primary | ||||||
| 7 | language spoken in a child's home, and Protactile, all of | ||||||
| 8 | which have been established to be essential in the | ||||||
| 9 | development of cognition, communication, literacy, and | ||||||
| 10 | language in deaf, hard of hearing, and DeafBlind infants, | ||||||
| 11 | toddlers, and children and in enhancing preschool and | ||||||
| 12 | kindergarten readiness. | ||||||
| 13 | (4) Maximize the resources associated with early | ||||||
| 14 | intervention services by ensuring that parents and | ||||||
| 15 | guardians of deaf, hard of hearing, and DeafBlind infants, | ||||||
| 16 | toddlers, and children have access to the resources to | ||||||
| 17 | support language and communication foundation needs and to | ||||||
| 18 | the curriculum and resources in all intervention and | ||||||
| 19 | educational settings. | ||||||
| 20 | (5) Enhance deaf, hard of hearing, and DeafBlind | ||||||
| 21 | children's independence, linguistic proficiency, | ||||||
| 22 | productivity, and socialization with peers, families, and | ||||||
| 23 | the community, as well as maximize the potential for these | ||||||
| 24 | children to lead quality lives, have adult independence, | ||||||
| 25 | receive postsecondary education, obtain gainful | ||||||
| 26 | employment, and build a network of critical relationships | ||||||
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| 1 | and support. | ||||||
| 2 | (b) The General Assembly declares that the goal of this | ||||||
| 3 | State is for deaf, hard of hearing, and DeafBlind children to | ||||||
| 4 | enter public and nonpublic schools in this State prepared for | ||||||
| 5 | learning, able to communicate with peers and staff, and having | ||||||
| 6 | access to resources to help these children succeed. | ||||||
| 7 | Section 10. Definitions. As used in this Act: | ||||||
| 8 | "American Sign Language" or "ASL" means a complete, | ||||||
| 9 | visual, and manual sign language with its own grammar and | ||||||
| 10 | syntax that is used by deaf or hard of hearing individuals and | ||||||
| 11 | that is the native language of the deaf community in the United | ||||||
| 12 | States and Canada. | ||||||
| 13 | "Communication" means the process of exchanging | ||||||
| 14 | information between individuals or groups that involves the | ||||||
| 15 | transmission of ideas, feelings, or facts from one person to | ||||||
| 16 | another, that can be verbal or nonverbal, and that plays a | ||||||
| 17 | crucial role in human interaction as it is how humans connect | ||||||
| 18 | and understand each other. | ||||||
| 19 | "DeafBlind" means concomitant hearing and vision | ||||||
| 20 | impairments, the combination of which causes significant | ||||||
| 21 | communication, developmental, or educational needs that cannot | ||||||
| 22 | be accommodated solely by accommodations for infants, toddlers | ||||||
| 23 | and children with deafness, low vision, or vision blindness. | ||||||
| 24 | "English" means a method of human communication consisting | ||||||
| 25 | of the use of English words in a structured and conventional | ||||||
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| 1 | way, including spoken English, written English, or English | ||||||
| 2 | with or without the use of visual or tactile supplements or | ||||||
| 3 | dual language services. | ||||||
| 4 | "English literacy" means the ability to read and write in | ||||||
| 5 | English. | ||||||
| 6 | "IEP" means an individualized education program. | ||||||
| 7 | "IFSP" means an individualized family service plan. | ||||||
| 8 | "Kindergarten readiness" means language, communication, | ||||||
| 9 | early reading and mathematics literacy, and social skills | ||||||
| 10 | development for each language spoken in a child's home that is | ||||||
| 11 | consistent with age-related peers by kindergarten. | ||||||
| 12 | "Language" means the age-appropriate development of human | ||||||
| 13 | communication, whether spoken, written, or signed, consisting | ||||||
| 14 | of the use of words and signs in a structured and conventional | ||||||
| 15 | way. | ||||||
| 16 | "Language developmental milestones" means milestones of | ||||||
| 17 | development that are measured by validated instruments used to | ||||||
| 18 | meet the requirements of federal law for the assessment of | ||||||
| 19 | children from birth to 5 years of age. | ||||||
| 20 | "Low vision" or "vision blindness" means a sensory | ||||||
| 21 | impairment in vision that, even after correction, adversely | ||||||
| 22 | affects a child's development and educational performance. | ||||||
| 23 | "Protactile" means a method of human communication | ||||||
| 24 | consisting of touch-based interactions for the purpose of | ||||||
| 25 | communication for individuals who are DeafBlind that has its | ||||||
| 26 | own grammar and syntax, that allows for individuals to connect | ||||||
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| 1 | with the world around them, and that fosters greater | ||||||
| 2 | independence for those with multisensory impairments. | ||||||
| 3 | Section 15. Language needs and monitoring program. | ||||||
| 4 | (a) This Section applies only to children from birth to 5 | ||||||
| 5 | years of age and is subject to appropriation. | ||||||
| 6 | (b) The Department of Human Services, the Illinois School | ||||||
| 7 | for the Deaf, and the Illinois School for the Visually | ||||||
| 8 | Impaired, in cooperation with the Deaf and Hard of Hearing | ||||||
| 9 | Commission, the Department of Early Childhood, the State Board | ||||||
| 10 | of Education, and the Department of Public Health, shall | ||||||
| 11 | establish a language needs and monitoring program for deaf, | ||||||
| 12 | hard of hearing, and DeafBlind infants, toddlers, and | ||||||
| 13 | children. The scope of the program shall include language and | ||||||
| 14 | communication developmental milestones in American Sign | ||||||
| 15 | Language, English, the primary language spoken in a child's | ||||||
| 16 | home, Protactile, or more than one of such languages. The | ||||||
| 17 | purpose of the program is to assess, monitor, and track the | ||||||
| 18 | language and communication developmental milestones of all | ||||||
| 19 | infants, toddlers, and children who are deaf, hard of hearing, | ||||||
| 20 | and DeafBlind and develop a resource for use by parents and | ||||||
| 21 | guardians to monitor and support deaf, hard of hearing, and | ||||||
| 22 | DeafBlind infants', toddlers', and children's expressive and | ||||||
| 23 | receptive language acquisition and developmental stages toward | ||||||
| 24 | English literacy and kindergarten readiness. | ||||||
| 25 | (c) The resource developed under subsection (b) shall do | ||||||
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| 1 | all of the following: | ||||||
| 2 | (1) Include the language and communication | ||||||
| 3 | developmental milestones selected by the advisory | ||||||
| 4 | committee established pursuant to subsection (g). | ||||||
| 5 | (2) Be appropriate for use, in both content and | ||||||
| 6 | administration, with deaf, hard of hearing, and DeafBlind | ||||||
| 7 | children from birth to 5 years of age who use American Sign | ||||||
| 8 | Language, English, the primary language spoken in a | ||||||
| 9 | child's home, Protactile, or more than one of such | ||||||
| 10 | languages. | ||||||
| 11 | (3) Include and present evidence-based, developmental | ||||||
| 12 | milestones in language and communication for typically | ||||||
| 13 | developing children, by age range. | ||||||
| 14 | (4) Be written for clarity and ease of use by parents, | ||||||
| 15 | guardians, health care professionals, interventionists, | ||||||
| 16 | and educators. | ||||||
| 17 | (5) Be aligned to any State guidelines on early | ||||||
| 18 | intervention, identification, diagnosis, and early | ||||||
| 19 | childhood education pursuant to federal law and to State | ||||||
| 20 | standards in English language arts. | ||||||
| 21 | (6) Inform parents and guardians of their right to | ||||||
| 22 | choose their preferred language that will be used to | ||||||
| 23 | communicate and provide a language-rich learning | ||||||
| 24 | environment for a parent's or guardian's infant, toddler, | ||||||
| 25 | or child, whether the preferred language is English, ASL, | ||||||
| 26 | the primary language spoken in the child's home, | ||||||
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| 1 | Protactile, or another language. | ||||||
| 2 | (7) Inform parents and guardians that they may bring | ||||||
| 3 | the resource to an IFSP, IEP, or federal Section 504 plan | ||||||
| 4 | meeting for purposes of supporting their choices and | ||||||
| 5 | observations regarding their infant's, toddler's, or | ||||||
| 6 | child's language and communication development. The | ||||||
| 7 | resource shall include evidence-based, comprehensive | ||||||
| 8 | information about ASL, English, the primary language | ||||||
| 9 | spoken in a child's home, Protactile, or more than one of | ||||||
| 10 | such languages, as well as available services and | ||||||
| 11 | programs. | ||||||
| 12 | (8) Make clear that the resource is a checklist of | ||||||
| 13 | developmental milestones that has been created from | ||||||
| 14 | evidence-based resources and completed by a parent or | ||||||
| 15 | guardian and relevant professionals together, that the | ||||||
| 16 | resource may have similarities and differences from the | ||||||
| 17 | standardized testing presented at an IFSP, IEP, or federal | ||||||
| 18 | Section 504 plan meeting, and that the parent or guardian | ||||||
| 19 | should be aware that a school district is not required to | ||||||
| 20 | use Language Equality and Acquisition for Deaf Kids | ||||||
| 21 | (LEAD-K) milestones or assessments specific to LEAD-K for | ||||||
| 22 | the purpose of developing an IEP or federal Section 504 | ||||||
| 23 | plan. | ||||||
| 24 | (d) The Department of Human Services, the Illinois School | ||||||
| 25 | for the Deaf, and the Illinois School for the Visually | ||||||
| 26 | Impaired, in cooperation with the Deaf and Hard of Hearing | ||||||
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| 1 | Commission, the Department of Early Childhood, the State Board | ||||||
| 2 | of Education, and the Department of Public Health, shall work | ||||||
| 3 | with subject matter experts from the advisory committee | ||||||
| 4 | established pursuant to subsection (g) to select from the | ||||||
| 5 | current lists of validated tools or assessments for | ||||||
| 6 | interventionists and educators what tools or assessments are | ||||||
| 7 | to be used in the assessment of language, communication, and | ||||||
| 8 | pre-literacy development for all deaf, hard of hearing, and | ||||||
| 9 | DeafBlind infants, toddlers, and children. The tools or | ||||||
| 10 | assessments shall do all of the following: | ||||||
| 11 | (1) Be in a format that shows language and | ||||||
| 12 | communication developmental milestones. | ||||||
| 13 | (2) Be selected for use by the advisory committee to | ||||||
| 14 | track the development of deaf, hard of hearing, and | ||||||
| 15 | DeafBlind infants', toddlers', and children's expressive | ||||||
| 16 | and receptive language acquisition and developmental | ||||||
| 17 | milestones toward literacy. | ||||||
| 18 | (3) Be selected from a list of tools or assessments | ||||||
| 19 | used to assess the development of all children from birth | ||||||
| 20 | to 5 years of age. | ||||||
| 21 | (4) Be appropriate, in both content and | ||||||
| 22 | administration, for use with deaf, hard of hearing, and | ||||||
| 23 | DeafBlind infants, toddlers, and children. | ||||||
| 24 | The tools or assessments may be used, in addition to the | ||||||
| 25 | assessments required by federal law, by a child's IFSP or IEP, | ||||||
| 26 | as applicable, to track a deaf, hard of hearing, or DeafBlind | ||||||
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| 1 | infant's, toddler's, or child's progress and to establish or | ||||||
| 2 | modify an IFSP or IEP. A child with a federal Section 504 plan | ||||||
| 3 | shall be assessed to ensure appropriate services are provided. | ||||||
| 4 | The educator tools or assessments may reflect the | ||||||
| 5 | recommendations of the advisory committee. | ||||||
| 6 | (e) The Department of Human Services, the Illinois School | ||||||
| 7 | for the Deaf, and the Illinois School for the Visually | ||||||
| 8 | Impaired, in cooperation with the Deaf and Hard of Hearing | ||||||
| 9 | Commission, the Department of Early Childhood, the State Board | ||||||
| 10 | of Education, and the Department of Public Health, shall | ||||||
| 11 | disseminate the resource developed under subsection (b) to the | ||||||
| 12 | parents and guardians of deaf, hard of hearing, and DeafBlind | ||||||
| 13 | infants, toddlers, and children and, pursuant to federal law, | ||||||
| 14 | the Department of Human Services, the Department of Early | ||||||
| 15 | Childhood, the State Board of Education, and the Department of | ||||||
| 16 | Public Health shall disseminate the tools and assessments | ||||||
| 17 | selected under subsection (d) to local educational agencies | ||||||
| 18 | for use in the development and modification of IEP, IFSP, and | ||||||
| 19 | federal Section 504 plans. | ||||||
| 20 | The applicable State agencies shall provide parents and | ||||||
| 21 | guardians with materials and training on the tools, | ||||||
| 22 | assessments, and resources for deaf, hard of hearing, and | ||||||
| 23 | DeafBlind infants, toddlers, and children. | ||||||
| 24 | (f) Beginning on July 1, 2027, language assessments shall | ||||||
| 25 | be given to each child who is deaf, hard of hearing, or | ||||||
| 26 | DeafBlind until the child is 5 years of age. The language | ||||||
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| 1 | assessments shall be administered by a credentialed or | ||||||
| 2 | licensed early interventionist, educator, speech-language | ||||||
| 3 | pathologist, or other professional in conjunction with the | ||||||
| 4 | child's parent or guardian. The assessments shall be provided | ||||||
| 5 | in accordance with this Section and any rules adopted pursuant | ||||||
| 6 | to this Act. | ||||||
| 7 | A deaf, hard of hearing, or DeafBlind child shall be | ||||||
| 8 | identified by the time the child turns one month old, be | ||||||
| 9 | referred to early intervention services by the time the child | ||||||
| 10 | turns 3 months old, and receive early intervention services by | ||||||
| 11 | the time the child turns 6 months old, unless medically | ||||||
| 12 | contraindicated. | ||||||
| 13 | Deaf, hard of hearing, and DeafBlind infants, toddlers, | ||||||
| 14 | and children who are not newborns and who have late onset | ||||||
| 15 | hearing loss shall be diagnosed not later than 3 months after | ||||||
| 16 | any suspected hearing loss and shall be immediately referred | ||||||
| 17 | to early intervention services after diagnosis. | ||||||
| 18 | If a deaf, hard of hearing, or DeafBlind child is referred | ||||||
| 19 | to early intervention services, formal assessments shall be | ||||||
| 20 | implemented by a developmental therapist with an EI | ||||||
| 21 | Specialist: Developmental Therapist/Hearing credential or a | ||||||
| 22 | provider with discipline-specific credentials upon the child | ||||||
| 23 | entering an early intervention program and at yearly | ||||||
| 24 | intervals. Developmental therapists with an EI Specialist: | ||||||
| 25 | Developmental Therapist/Hearing credential and providers with | ||||||
| 26 | discipline-specific credentials shall refer, as appropriate, | ||||||
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| 1 | children whose primary language is ASL or Protactile to others | ||||||
| 2 | to ensure assessments of those children are completed by | ||||||
| 3 | individuals with the ability to accurately conduct such | ||||||
| 4 | assessments. | ||||||
| 5 | Deaf, hard of hearing, and DeafBlind children entering | ||||||
| 6 | school with an IEP or federal Section 504 plan shall receive a | ||||||
| 7 | formal assessment implemented by a licensed teacher of the | ||||||
| 8 | deaf or a discipline-specific licensed teacher. Licensed | ||||||
| 9 | teachers of the deaf or discipline-specific licensed teachers | ||||||
| 10 | shall refer, as appropriate, children whose primary language | ||||||
| 11 | is ASL or Protactile to others to ensure assessments of those | ||||||
| 12 | children are completed by individuals with the ability to | ||||||
| 13 | accurately conduct such assessments. | ||||||
| 14 | The advisory committee established pursuant to subsection | ||||||
| 15 | (g) shall list the criteria used to identify individuals who | ||||||
| 16 | are qualified to conduct accurate ASL or Protactile | ||||||
| 17 | assessments in the resource developed under subsection (b). | ||||||
| 18 | If a deaf, hard of hearing, or DeafBlind child does not | ||||||
| 19 | demonstrate progress in expressive and receptive language | ||||||
| 20 | skills, the child's IFSP, IEP, or federal Section 504 plan | ||||||
| 21 | team shall be responsible for identifying areas that are not | ||||||
| 22 | meeting the language developmental milestones or progressing | ||||||
| 23 | toward them. Data collected on children with disabilities in | ||||||
| 24 | addition to hearing loss, children that are non-native English | ||||||
| 25 | speakers, and children with unilateral or bilateral hearing | ||||||
| 26 | loss should be extrapolated and analyzed independently to | ||||||
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| 1 | ensure that data efficacy is not compromised. The IFSP, IEP, | ||||||
| 2 | or federal Section 504 plan team, including the child's parent | ||||||
| 3 | or guardian, shall recommend and implement specific | ||||||
| 4 | strategies, services, and programs that shall be provided to | ||||||
| 5 | assist the child's success toward learning American Sign | ||||||
| 6 | Language, English, the primary language spoken in the child's | ||||||
| 7 | home, Protactile, or more than one of such languages. A | ||||||
| 8 | follow-up meeting shall be scheduled within 30 to 60 days | ||||||
| 9 | after the recommendations are made to determine the effects of | ||||||
| 10 | the recommendations. | ||||||
| 11 | (g) An advisory committee on language assessment programs | ||||||
| 12 | shall be established. | ||||||
| 13 | The advisory committee shall consist of all of the | ||||||
| 14 | following voting members, each appointed by the Secretary of | ||||||
| 15 | Human Services, in consultation with the Illinois School for | ||||||
| 16 | the Deaf and the Illinois School for the Visually Impaired: | ||||||
| 17 | (1) One parent or guardian of a child who is no more | ||||||
| 18 | than 18 years of age, who is deaf, hard of hearing, or | ||||||
| 19 | DeafBlind, and who uses ASL and the English language. | ||||||
| 20 | (2) One parent or guardian of a child who is no more | ||||||
| 21 | than 18 years of age, who is deaf, hard of hearing, or | ||||||
| 22 | DeafBlind, and who primarily uses spoken English, without | ||||||
| 23 | visual supplements. | ||||||
| 24 | (3) One expert on language outcomes for deaf and hard | ||||||
| 25 | of hearing children using ASL and the English language. | ||||||
| 26 | (4) One licensed teacher of deaf and hard of hearing | ||||||
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| 1 | pupils from a spoken English-only school or one expert on | ||||||
| 2 | language outcomes for deaf and hard of hearing children | ||||||
| 3 | using spoken English, with or without visual supplements. | ||||||
| 4 | (5) One licensed teacher of deaf and hard of hearing | ||||||
| 5 | pupils whose expertise is in curriculum and instruction in | ||||||
| 6 | ASL and English, with or without visual supplements, or | ||||||
| 7 | one licensed teacher of deaf and hard of hearing pupils | ||||||
| 8 | whose expertise is in ASL and English language assessment, | ||||||
| 9 | with or without visual supplements. | ||||||
| 10 | (6) A psychologist with expertise in assessing deaf | ||||||
| 11 | and hard of hearing children who use or are fluent in ASL | ||||||
| 12 | and English. | ||||||
| 13 | (7) One developmental therapist with an EI Specialist: | ||||||
| 14 | Developmental Therapist/Hearing credential who works with | ||||||
| 15 | deaf and hard of hearing infants and toddlers using ASL | ||||||
| 16 | and the English language. | ||||||
| 17 | (8) One licensed speech-language pathologist who has | ||||||
| 18 | expertise in working with infants, toddlers, and children | ||||||
| 19 | who uses Listening and Spoken Language methodologies. | ||||||
| 20 | (9) One licensed speech-language pathologist who has | ||||||
| 21 | expertise in working with infants, toddlers, and children | ||||||
| 22 | who use ASL. | ||||||
| 23 | (10) One deaf person who represents the deaf | ||||||
| 24 | community. | ||||||
| 25 | (11) One DeafBlind specialist or DeafBlind educator | ||||||
| 26 | whose expertise is in DeafBlind advocacy or education. | ||||||
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| 1 | (12) One licensed teacher of deaf and hard of hearing | ||||||
| 2 | pupils who also has significant experience in working with | ||||||
| 3 | deaf, hard of hearing, or DeafBlind students with other | ||||||
| 4 | educational disabilities who are no more than 5 years of | ||||||
| 5 | age. | ||||||
| 6 | (13) One licensed pediatric audiologist with working | ||||||
| 7 | knowledge of ASL and English. | ||||||
| 8 | The advisory committee shall also consist of the following | ||||||
| 9 | nonvoting members, who shall provide administrative and other | ||||||
| 10 | support to the advisory committee: | ||||||
| 11 | (A) The State Superintendent of Education or his or | ||||||
| 12 | her designee. | ||||||
| 13 | (B) The Director of the Deaf and Hard of Hearing | ||||||
| 14 | Commission or his or her designee. | ||||||
| 15 | (C) The Secretary of Early Childhood or his or her | ||||||
| 16 | designee. | ||||||
| 17 | (D) The Director of Public Health or his or her | ||||||
| 18 | designee. | ||||||
| 19 | (E) The Superintendent of the Illinois School for the | ||||||
| 20 | Deaf or his or her designee. | ||||||
| 21 | (F) The Secretary of Human Services or his or her | ||||||
| 22 | designee. | ||||||
| 23 | The Department of Human Services shall call an | ||||||
| 24 | organizational meeting of the advisory committee within 60 | ||||||
| 25 | days after the effective date of this Act. At the | ||||||
| 26 | organizational meeting, the members of the advisory committee | ||||||
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| 1 | shall elect a chairperson from among the membership of the | ||||||
| 2 | advisory committee. The advisory committee may meet at any | ||||||
| 3 | time in person or via webinar within this State at the call of | ||||||
| 4 | the chairperson. | ||||||
| 5 | Members of the advisory committee shall serve without | ||||||
| 6 | compensation or travel reimbursement. Communication access | ||||||
| 7 | accommodations, such as interpreters and captioning, must be | ||||||
| 8 | provided at all meetings to ensure full participation. | ||||||
| 9 | A quorum of the advisory committee shall consist of a | ||||||
| 10 | two-thirds majority of the members appointed to the advisory | ||||||
| 11 | committee. All actions and recommendations of the advisory | ||||||
| 12 | committee must be approved by a vote of the appointed members. | ||||||
| 13 | Any vacancy in the advisory committee shall be filled in | ||||||
| 14 | the same manner as the original appointment. | ||||||
| 15 | The Department of Human Services, under the direction of | ||||||
| 16 | the Illinois School for the Deaf and the Illinois School for | ||||||
| 17 | the Visually Impaired, shall provide the advisory committee | ||||||
| 18 | with administrative support. | ||||||
| 19 | (h) Language developmental milestones selected by the | ||||||
| 20 | advisory committee shall be aligned with this State's infant, | ||||||
| 21 | toddler, preschool, and school-age guidelines, as well as | ||||||
| 22 | federal laws and State standards in English language arts and | ||||||
| 23 | related programs. | ||||||
| 24 | (i) On or before December 1, 2027, the advisory committee | ||||||
| 25 | shall develop specific action plans, timelines, and | ||||||
| 26 | anticipated costs and propose recommendations for rules that | ||||||
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| 1 | are necessary to fully implement language and communication | ||||||
| 2 | tools, assessments, and resources. | ||||||
| 3 | The advisory committee may do all of the following: | ||||||
| 4 | (1) Solicit input from experts on the selection of | ||||||
| 5 | language and communication developmental milestones | ||||||
| 6 | related to the resources, tools, and assessments. | ||||||
| 7 | (2) Review, select, and monitor the use of language | ||||||
| 8 | and communication assessments for infants, toddlers, and | ||||||
| 9 | children who are deaf, hard of hearing, and DeafBlind. | ||||||
| 10 | (3) Identify criteria for qualified ASL and English | ||||||
| 11 | experts who can support initial and periodic IFSP, IEP, or | ||||||
| 12 | federal Section 504 plan team meetings. | ||||||
| 13 | (4) Identify methods for documenting, monitoring, and | ||||||
| 14 | submitting to all applicable State agencies child-specific | ||||||
| 15 | information on language and communication assessment | ||||||
| 16 | results, milestones, assessment tools, and the progress of | ||||||
| 17 | a child. | ||||||
| 18 | Child-specific periodic assessment results and | ||||||
| 19 | longitudinal progress information shall be made available to | ||||||
| 20 | each applicable State agency, the parent or guardian of a | ||||||
| 21 | child, teachers, and other professionals involved in the early | ||||||
| 22 | intervention and education of a child. | ||||||
| 23 | (j) The specific action plans and rule recommendations | ||||||
| 24 | developed by the advisory committee shall include, but are not | ||||||
| 25 | limited to, all of the following: | ||||||
| 26 | (1) Language and communication assessments, including | ||||||
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| 1 | child-specific data collection and timely tracking through | ||||||
| 2 | a statewide data system, of a child's development to | ||||||
| 3 | provide information about the child's receptive and | ||||||
| 4 | expressive language acquisition compared to the child's | ||||||
| 5 | typically developing, age-related peers who are not deaf, | ||||||
| 6 | hard of hearing, or DeafBlind. | ||||||
| 7 | (2) Language and communication assessments conducted | ||||||
| 8 | in accordance with standardized procedures and timelines | ||||||
| 9 | to monitor and track milestones in both receptive and | ||||||
| 10 | expressive language acquisition based on developmental | ||||||
| 11 | milestones toward kindergarten readiness for all children | ||||||
| 12 | who are deaf, hard of hearing, or DeafBlind from birth to 5 | ||||||
| 13 | years of age. | ||||||
| 14 | (3) Language assessments delivered in ASL, English, or | ||||||
| 15 | the primary language spoken in a child's home that have | ||||||
| 16 | been validated for the specific purposes for which each | ||||||
| 17 | assessment is used and appropriately normed. | ||||||
| 18 | (4) The reporting of assessment results to the parent | ||||||
| 19 | or guardian of a child and to the Department of Human | ||||||
| 20 | Services, the Illinois School for the Deaf, and the | ||||||
| 21 | Illinois School for the Visually Impaired, in cooperation | ||||||
| 22 | with the Deaf and Hard of Hearing Commission, the | ||||||
| 23 | Department of Early Childhood, the State Board of | ||||||
| 24 | Education, and the Department of Public Health, to ensure | ||||||
| 25 | accountability and provide information on how the | ||||||
| 26 | education of infants, toddlers, and children who are deaf, | ||||||
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| |||||||
| 1 | hard of hearing, or DeafBlind can be improved. The | ||||||
| 2 | Department of Human Services shall publish annual reports | ||||||
| 3 | related to this Act. | ||||||
| 4 | (5) The reporting of assessment results to a child's | ||||||
| 5 | IFSP, IEP, or federal Section 504 plan team, annually, to | ||||||
| 6 | assist the team in ensuring that appropriate language | ||||||
| 7 | development remains a priority and continues to be | ||||||
| 8 | monitored by the team. | ||||||
| 9 | Assessment results can be used to guide IFSP, IEP, and | ||||||
| 10 | federal Section 504 plan teams for the purpose of reviewing | ||||||
| 11 | the progress of a child's language and communication | ||||||
| 12 | development. | ||||||
| 13 | Language assessments shall be administered by individuals | ||||||
| 14 | who are proficient and have expertise in the language | ||||||
| 15 | developmental stages of ASL, English, or the primary language | ||||||
| 16 | spoken in a child's home. | ||||||
| 17 | (k) All activities in implementing this Section shall be | ||||||
| 18 | consistent with federal and State law regarding the education | ||||||
| 19 | of children with disabilities and the privacy of pupil | ||||||
| 20 | information. | ||||||
| 21 | (l) This Section is repealed on January 1, 2028. | ||||||
| 22 | Section 20. Joint action plan. On or before July 1, 2028, | ||||||
| 23 | the Department of Human Services, the Illinois School for the | ||||||
| 24 | Deaf, and the Illinois School for the Visually Impaired, in | ||||||
| 25 | cooperation with the Deaf and Hard of Hearing Commission, the | ||||||
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| 1 | Department of Early Childhood, the State Board of Education, | ||||||
| 2 | and the Department of Public Health, shall publish a joint | ||||||
| 3 | action plan and may propose legislation and rules necessary to | ||||||
| 4 | implement the recommendations of the advisory committee | ||||||
| 5 | established under Section 15. The joint action plan and | ||||||
| 6 | proposed legislation and rules may include all of the | ||||||
| 7 | following: | ||||||
| 8 | (1) Recommendations on evidence-based and | ||||||
| 9 | research-supported tools to help identify deaf, hard of | ||||||
| 10 | hearing, and DeafBlind children from birth to 5 years of | ||||||
| 11 | age. | ||||||
| 12 | (2) The development of resources and training for | ||||||
| 13 | parents, guardians, health care providers, | ||||||
| 14 | interventionists, and educators about State resources | ||||||
| 15 | available to deaf, hard of hearing, and DeafBlind infants, | ||||||
| 16 | toddlers, and children of school age. The resources and | ||||||
| 17 | training shall include evidence-based information on | ||||||
| 18 | language and communication development for English and | ||||||
| 19 | American Sign Language. | ||||||
| 20 | (3) Strategies and suggestions on ways to connect | ||||||
| 21 | deaf, hard of hearing, and DeafBlind adults with families | ||||||
| 22 | supporting children in need of support. | ||||||
| 23 | (4) Recommendations for training and educating | ||||||
| 24 | physicians and other health care providers on how to | ||||||
| 25 | connect deaf, hard of hearing, and DeafBlind children and | ||||||
| 26 | their parents or guardians to resources and support. | ||||||
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| 1 | Section 25. Reporting. On or before July 1, 2029, the | ||||||
| 2 | Department of Human Services, the Illinois School for the | ||||||
| 3 | Deaf, and the Illinois School for the Visually Impaired, in | ||||||
| 4 | cooperation with the Deaf and Hard of Hearing Commission, the | ||||||
| 5 | Department of Early Childhood, and the Department of Public | ||||||
| 6 | Health, shall jointly publish aggregate, de-identified data on | ||||||
| 7 | the number of children from birth to 3 years of age in this | ||||||
| 8 | State who have been diagnosed as deaf, hard of hearing, or | ||||||
| 9 | DeafBlind. The Department of Human Services shall publish | ||||||
| 10 | de-identified, aggregate data on the number and scope of | ||||||
| 11 | individualized education programs written for students from 3 | ||||||
| 12 | to 5 years of age who are enrolled in public preschool programs | ||||||
| 13 | and who are deaf, hard of hearing, and DeafBlind and the number | ||||||
| 14 | and scope of individualized education programs for students in | ||||||
| 15 | kindergarten and first grade who are deaf, hard of hearing, | ||||||
| 16 | and DeafBlind. The Department of Human Services, the Illinois | ||||||
| 17 | School for the Deaf, and the Illinois School for the Visually | ||||||
| 18 | Impaired, in cooperation with the Deaf and Hard of Hearing | ||||||
| 19 | Commission, the Department of Early Childhood, and the | ||||||
| 20 | Department of Public Health, may add additional data reporting | ||||||
| 21 | recommendations. The data must be shared within the | ||||||
| 22 | requirements of the federal Family Educational Rights and | ||||||
| 23 | Privacy Act of 1974, the Illinois School Student Records Act, | ||||||
| 24 | and the Personal Information Protection Act. | ||||||
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| |||||||
| 1 | Section 30. Information sharing. | ||||||
| 2 | (a) For the purposes of documentation and coordination of | ||||||
| 3 | medical care, intervention, or educational services, each | ||||||
| 4 | applicable State agency may share screening, diagnosis, | ||||||
| 5 | intervention, education, assessment, and monitoring | ||||||
| 6 | information with other State agencies and a child's parent or | ||||||
| 7 | guardian. | ||||||
| 8 | (b) If providing services to a newborn, infant, or child, | ||||||
| 9 | a medical care facility, health care provider, early | ||||||
| 10 | interventionist, local health department, or the University of | ||||||
| 11 | Illinois at Chicago Division of Specialized Care for Children | ||||||
| 12 | may submit information or reports to an applicable State | ||||||
| 13 | agency about the screening, diagnosis, intervention, | ||||||
| 14 | education, assessment, or follow-up services of the newborn, | ||||||
| 15 | infant, or child. Submission shall be done within 7 days after | ||||||
| 16 | the date of service or an inquiry from the State agency. | ||||||
| 17 | Reports shall be in a format determined by the State agency. | ||||||
| 18 | (c) The Department of Human Services, the Illinois School | ||||||
| 19 | for the Deaf, and the Illinois School for the Visually | ||||||
| 20 | Impaired, in cooperation with the Deaf and Hard of Hearing | ||||||
| 21 | Commission, the Department of Early Childhood, the State Board | ||||||
| 22 | of Education, and the Department of Public Health, may | ||||||
| 23 | exchange child-specific data for children who are deaf, hard | ||||||
| 24 | of hearing, and DeafBlind for the purpose of tracking, | ||||||
| 25 | monitoring, and quality assurance. | ||||||
| 26 | (d) Except in cases of willful or wanton misconduct, no | ||||||
| |||||||
| |||||||
| 1 | person or entity acting in compliance with this Section is | ||||||
| 2 | civilly or criminally liable for any act performed in | ||||||
| 3 | compliance with this Section, including furnishing any | ||||||
| 4 | required information under this Section. | ||||||
| 5 | Section 40. Rulemaking. The Department of Human Services, | ||||||
| 6 | in cooperation with the Deaf and Hard of Hearing Commission, | ||||||
| 7 | the Department of Early Childhood, the State Board of | ||||||
| 8 | Education, and the Department of Public Health, may adopt any | ||||||
| 9 | rules necessary to implement this Act. | ||||||
| 10 | Section 99. Effective date. This Act takes effect upon | ||||||
| 11 | becoming law.". | ||||||
