Bill Text: CA SR23 | 2015-2016 | Regular Session | Enrolled
Bill Title: Relative to Congenital Diaphragmatic Hernia Awareness Month
Sponsorship: Partisan Bill (Republican 1)
Status: (Passed) 2015-04-30 - Read. Adopted. (Ayes 36. Noes 0. Page 838.) [SR23 Detail]
Download: California-2015-SR23-Enrolled.html
BILL NUMBER: SR 23 ENROLLED
BILL TEXT
ADOPTED IN SENATE APRIL 30, 2015
ADOPTED IN ASSEMBLY APRIL 22, 2015
INTRODUCED BY Senator Fuller
APRIL 22, 2015
Relative to Congenital Diaphragmatic Hernia Awareness Month
LEGISLATIVE COUNSEL'S DIGEST
HOUSE OR SENATE RESOLUTIONS DO NOT CONTAIN A DIGEST
WHEREAS, Congenital diaphragmatic hernia (CDH) occurs when the
diaphragm fails to fully form, allowing abdominal organs to migrate
into the chest cavity and preventing lung growth; and
WHEREAS, The federal Centers for Disease Control and Prevention
recognizes CDH as a birth defect; and
WHEREAS, The majority of CDH patients suffer from underdeveloped
lungs or poor pulmonary function; and
WHEREAS, Babies born with CDH endure extended hospital stays in
intensive care with multiple surgeries; and
WHEREAS, CDH patients often endure long-term complications, such
as pulmonary hypertension, pulmonary hypoplasia, asthma,
gastrointestinal reflex, feeding disorders, and developmental delays;
and
WHEREAS, CDH survivors sometimes endure long-term mechanical
ventilation dependency, skeletal malformations, supplemental oxygen
dependency, enteral and parenteral nutrition, and hypoxic brain
injury; and
WHEREAS, CDH is treated through mechanical ventilation, a heart
and lung bypass, which is commonly known as extracorporeal membrane
oxygenation (ECMO), machines, and surgical repair; and
WHEREAS, Surgical repair is often not a permanent solution for CDH
and can lead to reherniation and require additional surgery; and
WHEREAS, CDH is diagnosed in utero in less than 50 percent of
cases; and
WHEREAS, Infants born with CDH have a high mortality rate,
averaging 50 percent, regardless of the level of severity of the
defect; and
WHEREAS, CDH has a rate of occurrence of 1 in every 2,500 live
births worldwide; and
WHEREAS, CDH affects approximately 1,600 babies each year in the
United States; and
WHEREAS, CDH has affected more than 700,000 babies worldwide since
2000; and
WHEREAS, CDH does not discriminate based on race, gender, or
socioeconomic status; and
WHEREAS, The cause of CDH is unknown; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate
declares the month of April 2015 as California Congenital
Diaphragmatic Hernia Awareness Month, and calls upon all Californians
to observe the month of April by participating in appropriate
activities and programs; and be it further
Resolved, That the Senate encourages that steps should be taken
to: (1) raise awareness of and increase public knowledge about CDH;
(2) inform all Californians about the dangers of CDH, especially
those groups that may be disproportionately affected by CDH or that
have lower survival rates; (3) disseminate information on the
importance of quality neonatal care of CDH patients; (4) promote
quality prenatal care and ultrasounds to detect CDH in utero; and (5)
support research funding of CDH to improve screening and treatment
for CDH, discover the causes of CDH, and develop a cure for CDH; and
be it further
Resolved, That the Senate encourages residents, interest groups,
and affected individuals to take an active role in the fight against
this devastating birth defect; and be it further
Resolved, That the Secretary of the Senate provide copies of this
resolution to the author for appropriate distribution.
