Bill Text: CA SCR106 | 2023-2024 | Regular Session | Chaptered

California Senate Concurrent Resolution 106

Bill Title: GM1 Gangliosidosis Awareness Day.

Spectrum: Moderate Partisan Bill (Democrat 64-14)

Status: (Passed) 2024-04-11 - Chaptered by Secretary of State. Res. Chapter 34, Statutes of 2024. [SCR106 Detail]

Download: California-2023-SCR106-Chaptered.html

Senate Concurrent Resolution No. 106

CHAPTER 34

Relative to GM1 Gangliosidosis Awareness Day.

[ Filed with Secretary of State April 11, 2024. ]

LEGISLATIVE COUNSEL'S DIGEST

SCR 106, Padilla. GM1 Gangliosidosis Awareness Day.

This measure would declare May 23, 2024, as GM1 Gangliosidosis Awareness Day in California.

Fiscal Committee: NO

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and

WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and

WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2024, as GM1 Gangliosidosis Awareness Day in California; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.