Bill Text: CA AR45 | 2021-2022 | Regular Session | Introduced

California Assembly Resolution 45 (Prior Session Legislation)

Introduced

Bill Title: Relative to X-Linked Hypophosphatemia awareness.

Sponsorship: Slight Partisan Bill (Democrat 54-17-1)

Status: (Passed) 2021-06-17 - Read. Adopted. (Ayes 72. Noes 0. Page 2017.). [AR45 Detail]

Download: California-2021-AR45-Introduced.html

CALIFORNIA LEGISLATURE— 2021–2022 REGULAR SESSION

House Resolution

No. 45

Introduced by Assembly Member Levine

May 12, 2021

Relative to X-Linked Hypophosphatemia awareness.

LEGISLATIVE COUNSEL'S DIGEST

HR 45, as introduced, Levine.

WHEREAS, X-Linked Hypophosphatemia (XLH) is a whole-body, whole-life rare genetic disorder that affects the person from birth through childhood, adulthood, and advanced age, affecting the patient’s muscular, skeletal, auditory, and nervous systems; and

WHEREAS, XLH affects about one in 20,000 newborns, according to the National Institutes of Health; and

WHEREAS, The effects of the disease cause serious and debilitation symptoms that have a major impact on the lives of those people who suffer from XLH and their families; and

WHEREAS, Patients affected by XLH and their families often encounter a variety of problems outside of the illness itself, such as difficulty in obtaining accurate and timely diagnoses, finding effective treatment options, and being able to afford the appropriate treatment; and

WHEREAS, XLH is not a curable disease; however, dedicated researchers around the world continue their efforts to understand how genetic mutations work with the hope that a cure will be developed one day; and

WHEREAS, Educational programs must be public and constant so that new parents and health providers can be exposed to the most up-to-date information; and

WHEREAS, The XLH Network, Inc., (www.xlhnetwork.org) is a nonprofit organization in support of caregivers and patients affected by XLH; now, therefore, be it

Resolved by the Assembly of the State of California, That the Assembly hereby proclaims June 23, 2021, as X-Linked Hypophosphatemia Awareness Day and June 2021 as XLH Awareness Month in California; and be it further

Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.