Bill Text: CA SCR104 | 2013-2014 | Regular Session | Introduced

NOTE: There are more recent revisions of this legislation. Read Latest Draft

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Bill Title: Mitochondrial Disease Awareness Week.

Spectrum: Slight Partisan Bill (Democrat 52-19)

Status: (Passed) 2014-08-25 - Chaptered by Secretary of State. Chapter 124, Statutes of 2014. [SCR104 Detail]

Download: California-2013-SCR104-Introduced.html

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BILL NUMBER: SCR 104	INTRODUCED
	BILL TEXT


INTRODUCED BY   Senator Huff

                        APRIL 1, 2014

   Relative to Mitochondrial Disease Awareness Week.


	LEGISLATIVE COUNSEL'S DIGEST


   SCR 104, as introduced, Huff. Mitochondrial Disease Awareness
Week.
   This measure would declare the third week of September 2014, and
the third week of September in each subsequent year, as Mitochondrial
Disease Awareness Week.
   Fiscal committee: no.



   WHEREAS, Few people know of mitochondrial disease, yet every 30
minutes a child is born who will develop this disease by 10 years of
age; and
   WHEREAS, There is no cure for mitochondrial disease; and
   WHEREAS, Mitochondrial disease is often misdiagnosed; and
   WHEREAS, Mitochondrial disease occurs when mitochondria inside of
cells fail to carry out their primary functions; and
   WHEREAS, When mitochondria fail, less and less energy is generated
within the cell; and
   WHEREAS, If this process is repeated throughout the body, whole
systems begin to fail, and the life of the person in whom this is
happening is severely compromised; and
   WHEREAS, The disease primarily affects children; and
   WHEREAS, Diseases of the mitochondria appear to cause the most
damage to cells of the brain, heart, liver, skeletal muscles,
kidneys, and the endocrine and respiratory systems; and
   WHEREAS, Common symptoms include muscle weakness and pain,
gastrointestinal disorders, poor growth, cardiac disease, liver
disease, diabetes, respiratory problems, seizures, visual and hearing
problems, and susceptibility to infection; and
   WHEREAS, Because so little is known about the disease, there are
only a few hospitals in the world that offer treatment, causing
affected families to travel regularly or even relocate to receive
treatment; and
   WHEREAS, Mitochondrial disease is progressive, likely terminal,
and requires a high level of care and extremely expensive medical
treatment that often exceeds covered insurance benefits, creating
great financial burdens on affected families; and
   WHEREAS, The third week of September is observed globally as
Mitochondrial Disease Awareness Week; now, therefore, be it
   Resolved by the Senate of the State of California, the Assembly
thereof concurring, That the Legislature does hereby proclaim the
third week of September 2014, and the third week of each subsequent
year, as Mitochondrial Disease Awareness Week; and be it further
   Resolved, That the Secretary of the Senate transmit copies of this
resolution to the author for appropriate distribution.