US SB2641 | 2015-2016 | 114th Congress

Status

Spectrum: Partisan Bill (Democrat 5-0)
Status: Introduced on March 3 2016 - 25% progression, died in committee
Action: 2016-03-03 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Pending: Senate Health, Education, Labor, And Pensions Committee
Text: Latest bill text (Introduced) [PDF]

Summary

Aidan's Law This bill amends the Public Health Service Act to require hospitals, child care centers, clinics, and similar institutions caring for infants who are 28 days or less of age to administer to such infants a test for adrenoleukodystrophy, a progressive genetic disease that can cause behavioral changes, seizures, and other neurological symptoms. To be eligible for funds under the Heritable Disorders Program, a state must establish adrenoleukodystrophy testing standards and procedures. These standards and procedures are subject to review and approval by the Advisory Committee on Heritable Disorders in Newborns and Children. The committee must establish standards and procedures for states without approved standards and procedures.

Tracking Information

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Title

Aidan's Law

Sponsors


History

DateChamberAction
2016-03-03SenateRead twice and referred to the Committee on Health, Education, Labor, and Pensions.

Same As/Similar To

HB4692 (Same As) 2016-03-04 - Referred to the Subcommittee on Health.

Subjects


US Congress State Sources


Bill Comments

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