US Congress Senate Bill 1158 (Prior Session Legislation)

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Spectrum: Moderate Partisan Bill (Democrat 17-4-1)
Status: Introduced on May 21 2009 - 25% progression, died in chamber
Action: 2009-05-21 - Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Text: Latest bill text (Introduced) [PDF]

SMA Treatment Acceleration Act of 2009 - Amends the Public Health Service Act to require the Director of the National Institutes of Health (NIH) to establish a national clinical trials network for spinal muscular atrophy by upgrading and unifying spinal muscular atrophy clinical trial sites and recruiting new investigators and sites. Requires the Director to ensure that such network: (1) conducts coordinated, multisite, clinical trials of therapies and clinical approaches to the treatment of spinal muscular atrophy; and (2) rapidly and efficiently disseminates scientific findings to the field. Requires the Director to: (1) establish a data coordinating center with respect to spinal muscular atrophy; and (2) expand and intensify NIH programs with respect to preclinical translation research related to spinal muscular atrophy. Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), to enhance and support a spinal muscular atrophy patient registry to provide for expanded epidemiological research towards improving awareness, management, treatment, and prevention of spinal muscular atrophy. Requires the Secretary to ensure the collection and analysis of longitudinal data related to individuals of all ages. Directs the Secretary to establish the Interagency Spinal Muscular Atrophy Research Coordinating Committee. Sets forth the duties of the Committee, including to develop a comprehensive strategy related to spinal muscular atrophy research and other related neurological diseases and disorders. Requires the Secretary to establish a program to provide information and education on spinal muscular atrophy to health professionals and the general public.

SMA Treatment Acceleration Act of 2009

Sen. Sherrod Brown [D-OH]	Sen. Richard Burr [R-NC]	Sen. Robert Casey [D-PA]	Sen. Saxby Chambliss [R-GA]
Sen. Dianne Feinstein [D-CA]	Sen. Al Franken [D-MN]	Sen. Kirsten Gillibrand [D-NY]	Sen. Kay Hagan [D-NC]
Sen. Johnny Isakson [R-GA]	Sen. John Kerry [D-MA]	Sen. Frank Lautenberg [D-NJ]	Sen. Robert Menendez [D-NJ]
Sen. Patty Murray [D-WA]	Sen. Jack Reed [D-RI]	Sen. Bernard Sanders [I-VT]	Sen. Charles Schumer [D-NY]
Sen. Arlen Specter [D-PA]	Sen. Debbie Stabenow [D-MI]	Sen. Mark Warner [D-VA]	Sen. Jim Webb [D-VA]
Sen. Sheldon Whitehouse [D-RI]	Sen. Roger Wicker [R-MS]

Date	Chamber	Action
2009-05-21		Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

HB2149 (Related) 2009-04-29 - Referred to the Subcommittee on Health.

Type	Source
Summary	https://www.congress.gov/bill/111th-congress/senate-bill/1158/all-info
Text	https://www.congress.gov/111/bills/s1158/BILLS-111s1158is.pdf