Bill Text: NY J02650 | 2019-2020 | General Assembly | Introduced

New York Senate Resolution 2650 (Prior Session Legislation)

Introduced

Bill Title: Commemorating the 22nd Annual Hunter's Day of Hope and Prayer for Children on February 15, 2020

Spectrum: Partisan Bill (Republican 1-0)

Status: (Passed) 2020-01-28 - ADOPTED [J02650 Detail]

Download: New_York-2019-J02650-Introduced.html


Senate Resolution No. 2650

BY: Senator RANZENHOFER

        COMMEMORATING the 22nd Annual Hunter's Day of Hope
        and  Prayer  for  Children  on February 15, 2020, in
        conjunction with their annual day to raise awareness
        and support for Leukodystrophies

  WHEREAS, It is the sense of this Legislative Body to recognize  that
the  quality  of  life for children in the communities across this great
State of New York is enriched by the concerned and dedicated efforts  of
those  organizations  and  individuals  of  distinction  whose  singular
purpose is the care and welfare of children; and

  WHEREAS, On Saturday, February 15, 2020, Hunter's Hope will  host  a
day of activities and celebration for local families; and

  WHEREAS,  The  Hunter's  Hope Foundation was established in 1997, by
professional Football Hall of  Fame  member  and  former  Buffalo  Bills
quarterback, Jim Kelly, and his wife, Jill, in honor of their son Hunter
(February  14, 1997- August 5, 2005) who was diagnosed with Globoid-Cell
Leukodystrophy, more commonly known as Krabbe Disease; and

  WHEREAS, The Kellys started Hunter's Day  of  Hope  and  Prayer  for
Children  on  February 14, 1998, to celebrate the shared Valentine's Day
birthday of their son, Hunter James Kelly with his  father,  Jim  Kelly;
and

  WHEREAS, Hunter Kelly was born on February 14, 1997, and four months
following  his  birth,  was  diagnosed  with  Krabbe  Leukodystrophy, an
inherited, fatal, nerves system disease; and

  WHEREAS, Hunter Kelly lived to be eight and a half  years  old,  and
lost  his  life  to  Krabbe  Disease  on August 5, 2005; the Kellys have
continued with Hunter's Day  of  Hope  and  Prayer  for  Children  as  a
celebration   of   love,   prayer  and  thanksgiving  for  all  children
everywhere; and

  WHEREAS, Hunter's Day of Hope and Prayer for Children is  a  special
time  for  families  to  come  together  and spend time having fun while
enjoying music, dancing, games, face painting, and refreshments  at  the
conclusion  of  the  event,  there  is  a special time of prayer for all
children; and

  WHEREAS, Hunter's Day of Hope and Prayer  for  Children  is  a  free
event  open  to  people  of  all  ages,  races  and  walks  of life; the
celebration has continued successfully for 22  years  and  continues  to
have dozens of sponsors throughout the Western New York Community; and

  WHEREAS,  In  recent  years, the event has welcomed approximately 4,
000 children and parents annually; and

  WHEREAS, The Hunter's Day of Hope and Prayer for  Children  fulfills
one of the primary goals of Hunter's Hope, to remind parents how blessed
they are to have the gift of children; and

  WHEREAS, Jill and Jim Kelly hope that though sharing Hunter's story,
they inspire in parents an appreciation of all children and thankfulness
for these precious gifts of life; and

  WHEREAS, Through the Foundation is the Kellys lifelong commitment to
increase  public  awareness of Krabbe Disease and other Leukodystrophies
thus increasing the probability of early  detection  and  treatment;  to
gather  and provide current, functional information and service linkages
to families of children with Leukodystrophies; to fund research  efforts
that  will identify new treatments, therapies and ultimately, a cure for
Krabbe disease and other Leukodystrophies; and to establish an  alliance
of  hope  that  will  nourish,  affirm  and confront the urgent need for
medical, financial and emotional support of  family  members  and  those
afflicted with Leukodystrophies; now, therefore, be it

  RESOLVED,  That  this Legislative Body pause in its deliberations to
commemorate the 22nd Annual Hunter's Day of Hope and Prayer for Children
on February 15, 2020, in conjunction with  their  annual  day  to  raise
awareness and support for Leukodystrophies; and be it further

  RESOLVED,  That  a  copy  of this Resolution, suitably engrossed, be
transmitted to the Hunter's Hope Foundation.