Bill Text: NY J01399 | 2019-2020 | General Assembly | Introduced

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Bill Title: Memorializing Governor Andrew M. Cuomo to proclaim May 2019, as Cystic Fibrosis Awareness Month in the State of New York

Spectrum: Slight Partisan Bill (Democrat 40-22)

Status: (Passed) 2019-05-07 - ADOPTED [J01399 Detail]

Download: New_York-2019-J01399-Introduced.html

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Assembly Resolution No. 418

BY: M. of A. Jones

        MEMORIALIZING Governor Andrew M. Cuomo to proclaim
        May  2019, as Cystic Fibrosis Awareness Month in the
        State of New York

  WHEREAS, It is the custom of  this  Legislative  Body  to  recognize
official  months  that  are  set  aside to increase awareness of serious
illnesses that affect the lives of citizens of New York State; and

  WHEREAS, Attendant to such concern, and  in  full  accord  with  its
long-standing  traditions,  this  Legislative  Body  is  justly proud to
memorialize Governor Andrew M. Cuomo to proclaim  May  2019,  as  Cystic
Fibrosis Awareness Month in the State of New York; and

  WHEREAS, The Cystic Fibrosis Foundation, a donor-supported nonprofit
organization,  is the world's leader in the search for a cure for cystic
fibrosis, having raised and invested hundreds of millions of dollars  to
help develop drugs and therapies; and

  WHEREAS,  The  Cystic  Fibrosis Foundation is working to cure cystic
fibrosis and to provide all  people  struggling  with  the  disease  the
opportunity to lead full, productive lives; and

  WHEREAS, Cystic fibrosis, commonly referred to as "CF", is a genetic
disease  affecting  more  than  30,000 children and adults in the United
States, and 70,000 children and adults worldwide, 1,650 of whom live  in
New York; and

  WHEREAS,  A  defective gene causes the body to produce an abnormally
thick, sticky mucus that clogs the lungs, and these  secretions  produce
life-threatening  lung  infections and obstruct the pancreas, preventing
digestive enzymes from reaching the intestines to help  break  down  and
absorb food; and

  WHEREAS,  More than 10 million Americans are symptomless carriers of
the defective CF gene, and CF occurs in approximately one of every 3,500
live births in the United States, making  it  the  most  common  generic
disease in the U.S.; and

  WHEREAS,  The  median  age  of survival for a person with CF is 47.7
years; and

  WHEREAS, With advances in the treatment of CF, the number of  adults
with  CF has steadily grown, and approximately 1,000 new cases of CF are
diagnosed each year; and

  WHEREAS, Through the CF Foundation's efforts and care centers in New
York, the life expectancy of a child with CF has doubled in the last  30
years, and research to find a cure is more promising than ever; and

  WHEREAS,  More  than 75% of people are diagnosed by age 2, more than
50% of the CF population is 18 years of age and older, and  people  with
CF  have  a  variety  of  symptoms  attributed  to  the  more than 1,800
mutations of the CF gene; and


  WHEREAS,  Infant  blood  screening  to detect genetic defects is the
most reliable and least costly method to identify persons likely to have
CF; and

  WHEREAS, Early diagnosis of CF permits early treatment and  enhances
quality  of  life  and  longevity and the treatment of CF depends on the
stage of the disease and the organs involved; and

  WHEREAS, Clearing mucus from the lungs is an important part  of  the
daily  CF  treatment  regimen,  and  other  types  of treatments include
inhaled antibiotics and pancreatic enzymes, among others; and

  WHEREAS, There are 23 accredited CF treatment centers in  New  York,
which specialize in the diagnosis of CF and the care of persons with CF;
and

  WHEREAS,  It is imperative that there be greater public awareness of
this serious health issue, and more must be done to increase activity at
the local, State and national levels; and

  WHEREAS, This Legislative Body  commends  the  dedication  of  those
working  to improve the quality of life of individuals with CF, families
of those individuals and the 66 thousand CF advocates in the great State
of New York, and expresses continued support for accelerated research to
develop more effective treatments for Cystic Fibrosis and to  ultimately
find a cure; now, therefore, be it

  RESOLVED,  That  this Legislative Body pause in its deliberations to
memorialize Governor Andrew M. Cuomo to proclaim  May  2019,  as  Cystic
Fibrosis Awareness Month in the State of New York; and be it further

  RESOLVED,  That  a  copy  of this Resolution, suitably engrossed, be
transmitted to The Honorable Andrew M. Cuomo, Governor of the  State  of
New York.