STATE OF NEW YORK
        ________________________________________________________________________

                                          6429

                               2021-2022 Regular Sessions

                   IN ASSEMBLY

                                     March 17, 2021
                                       ___________

        Introduced  by M. of A. HYNDMAN -- read once and referred to the Commit-
          tee on Health

        AN ACT to amend the public health law, in relation to  requiring  hospi-
          tals  distribute literature created by the commissioner to patients at
          a high risk of sickle cell disease

          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:

     1    Section  1.  The  public health law is amended by adding a new section
     2  2803-z to read as follows:
     3    § 2803-z. Sickle cell disease information  distribution.  The  commis-
     4  sioner  shall  design an informational packet about sickle cell disease,
     5  including screening, prevention, and treatment information. Every gener-
     6  al hospital shall distribute the packet to every  patient,  or,  if  the
     7  patient  lacks  capacity  to make health care decisions, to a person who
     8  has authority to make health care  decisions  for  the  patient  who  is
     9  suspected to be at high risk of inheriting sickle cell disease.
    10    §  2. Subdivision 1 of section 207 of the public health law is amended
    11  by adding a new paragraph (p) to read as follows:
    12    (p) sickle cell  disease  including  but  not  limited  to  screening,
    13  prevention,  and  treatment  information.  The  program shall include an
    14  advisory council under this section that  shall  include  patients  with
    15  sickle  cell  disease  and  their  families  and  health  care providers
    16  specializing in treating sickle cell disease, among others.
    17    § 3. This act shall take effect immediately.



         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD08518-02-1