S T A T E O F N E W Y O R K ________________________________________________________________________ 2361 2011-2012 Regular Sessions I N A S S E M B L Y January 18, 2011 ___________ Introduced by M. of A. GIBSON -- read once and referred to the Committee on Health AN ACT to amend the public health law, in relation to establishing "child stat" the children's disease tracking system program THE PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM- BLY, DO ENACT AS FOLLOWS: 1 Section 1. Article 25 of the public health law is amended by adding a 2 new title 9 to read as follows: 3 TITLE IX 4 "CHILD STAT" THE 5 CHILDREN'S DISEASE TRACKING SYSTEM PROGRAM 6 SECTION 2599-E. "CHILD STAT" THE CHILDREN'S DISEASE TRACKING SYSTEM 7 PROGRAM; ESTABLISHMENT. 8 2599-F. PROGRAM DEVELOPMENT. 9 2599-G. POWERS OF COMMISSIONER. 10 S 2599-E. "CHILD STAT" THE CHILDREN'S DISEASE TRACKING SYSTEM PROGRAM; 11 ESTABLISHMENT. "CHILD STAT" THE CHILDREN'S DISEASE TRACKING SYSTEM 12 PROGRAM IS HEREBY ESTABLISHED WITHIN THE DEPARTMENT. SUCH PROGRAM IS 13 ESTABLISHED TO ENABLE POLICY MAKERS AND HEALTH PRACTITIONERS TO MAKE 14 INFORMED DECISIONS WHEN FORMULATING POLICIES THAT AFFECT CHILDREN'S 15 HEALTH. 16 S 2599-F. PROGRAM DEVELOPMENT. 1. THE PROGRAM SHALL BE DESIGNED TO 17 IDENTIFY CLUSTERS OF DISEASES AND THEIR CAUSES, AND TO HELP MAKE 18 INFORMED POLICY DECISIONS THAT AFFECT CHILDREN'S HEALTH. 19 2. THE PROGRAM SHALL INCLUDE, BUT SHALL NOT BE LIMITED TO: 20 (A) A DISEASE TRACKING NETWORK AMONG FEDERAL, STATE AND LOCAL PUBLIC 21 HEALTH AGENCIES TO TRACK THE INCIDENCE AND PREVALENCE OF DISEASES 22 AFFECTING CHILDREN; AND 23 (B) A REGISTRY REQUIRING ALL HEALTH CARE PROVIDERS TO REPORT INCI- 24 DENCES OF CHILDREN AFFECTED BY DISEASES. EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD06272-01-1 A. 2361 2 1 3. THE DEPARTMENT SHALL WORK IN COORDINATION WITH THE DEPARTMENT OF 2 ENVIRONMENTAL CONSERVATION, IN THE COLLECTION AND ANALYSIS OF DATA 3 REGARDING THE INCIDENCE AND PREVALENCE OF DISEASES AFFECTING CHILDREN. 4 4. DATA TO BE COLLECTED SHALL INCLUDE, BUT SHALL NOT BE LIMITED TO: 5 (A) MEDICAL RECORDS; 6 (B) EXTENT, TREATMENT AND OUTCOME OF THE ILLNESS; 7 (C) MORTALITY RATES; 8 (D) DEMOGRAPHIC INFORMATION; 9 (E) LOCATION OF THE CHILD OR CHILDREN AFFECTED; AND 10 (F) INFORMATION FROM SURVEYS AND INTERVIEWS. 11 S 2599-G. POWERS OF COMMISSIONER. THE COMMISSIONER MAY ADMINISTER 12 DIRECTLY OR THROUGH CONTRACT, WITHIN THE AMOUNT OF FUNDS ALLOCATED AND 13 WITHIN AMOUNTS APPROPRIATED, THE CHILDREN'S DISEASE TRACKING SYSTEM 14 PROGRAM. THE COMMISSIONER SHALL ALSO MAKE GRANTS, WITHIN THE AMOUNT OF 15 FUNDS AVAILABLE THEREFOR, FOR PROJECTS TO IMPLEMENT THE PROVISIONS OF 16 THIS TITLE. 17 S 2. This act shall take effect immediately.