Bill Text: MI HR0110 | 2017-2018 | 99th Legislature | Enrolled
Bill Title: A resolution to declare May 2017 as Neurofibromatosis Awareness Month in the state of Michigan.
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2017-05-25 - Adopted [HR0110 Detail]
Download: Michigan-2017-HR0110-Enrolled.html
Reps. Yanez, Brinks, Chirkun, Cochran, Elder, Ellison, Faris, Green, Greig, Jones, Kelly, Maturen, Pagan, Rabhi, Sabo, Sneller, Sowerby, Wittenberg and Zemke offered the following resolution:
House Resolution No. 110.
A resolution to declare May 2017 as Neurofibromatosis Awareness Month in the state of Michigan.
Whereas, The Children’s Tumor Foundation is observing May as Neurofibromatosis Awareness Month to educate the public about this rare genetic disorder; and
Whereas, Although over 125,000 Americans are living with neurofibromatosis (NF) and 1 in every 3,000 births is diagnosed with NF, it is still is relatively unknown to the public; and
Whereas, NF affects all populations equally, regardless of race, ethnicity, or gender; and
Whereas, NF causes tumors to grow on nerves throughout the body and also can affect development of the brain, cardiovascular system, bones, and skin; and
Whereas, The disorder can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer; and
Whereas, The Children’s Tumor Foundation leads efforts to promote and financially sponsor world-class medical research aimed at finding effective treatments and, ultimately, a cure for NF; and
Whereas, The Children’s Tumor Foundation is actively fostering collaborative partnerships in both science and industry to speed the drug research and development process through a number of consortia; and
Whereas, The Children’s Tumor Foundation works to improve access to quality patient healthcare through its national NF Clinic Network; and
Whereas, The Children’s Tumor Foundation provides patient and family support through its information resources, youth programs, and local chapter activities; and
Whereas, Much remains to be done in raising public awareness of NF to help promote early diagnosis, proper management and treatment, prevention of complications, and support for research; now, therefore, be it
Resolved by the House of Representatives, That the members of this legislative body declare May 2017 as Neurofibromatosis Awareness Month in the state of Michigan. It is with great honor and appreciation that we take this time to join other states and nations in spreading awareness of neurofibromatosis and how many Americans it affects. On this month, we will recognize Neurofibromatosis Awareness Month in our state, our country, and our world.
