Bill Text: MI HR0028 | 2017-2018 | 99th Legislature | Enrolled
Bill Title: A resolution to declare February 28, 2017, as Rare Disease Day in the state of Michigan.
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2017-02-28 - Adopted [HR0028 Detail]
Download: Michigan-2017-HR0028-Enrolled.html
Reps. Faris, Bizon, Brinks, Camilleri, Canfield, Chirkun, Clemente, Cochran, Elder, Ellison, Geiss, Green, Greig, Hammoud, Hoadley, Howrylak, Hughes, Jones, Kelly, Lasinski, Moss, Pagan, Phelps, Schor, Sowerby, Wittenberg and Zemke offered the following resolution:
House Resolution No. 28.
A resolution to declare February 28, 2017, as Rare Disease Day in the state of Michigan.
Whereas, There are nearly 7,000 diseases and conditions considered rare (each affecting fewer than 200,000 Americans) in the United States, according to the National Institutes of Health (NIH); and
Whereas, While each of these diseases may affect small numbers of people, rare diseases as a group affect almost 30 million Americans; and
Whereas, According The National Organization for Rare Disorders (NORD), nearly one in ten Americans have rare diseases and approximately two-thirds of Americans with rare diseases are children;
Whereas, While more than 450 drugs and biologics have been approved for the treatment of rare diseases according to the Food and Drug Administration (FDA), millions of Americans still have rare diseases for which there is no approved treatment; and
Whereas, Individuals and families affected by rare diseases often experience problems such as diagnosis delay, difficulty finding a medical expert, and lack of access to treatments or ancillary services; and
Whereas, While the public is familiar with some rare diseases, many patients and families affected by less widely known rare diseases bear a large share of the burden of funding research and raising public awareness to support the search for treatments; and
Whereas, The National Organization for Rare Disorders (NORD) is organizing a nationwide observance of Rare Disease Day on February 28, 2017; now, therefore, be it
Resolved by the House of Representatives, That the members of this legislative body declare February 28, 2017, as Rare Disease Awareness Day in the state of Michigan.
