KY HB165 | 2018 | Regular Session


Spectrum: Partisan Bill (Democrat 1-0)
Status: Introduced on January 9 2018 - 25% progression, died in committee
Action: 2018-01-11 - to Appropriations & Revenue (H)
Pending: House Appropriations and Revenue Committee
Text: Latest bill text (Draft #1) [PDF]


Create new sections of KRS Chapter 211 to establish the Kentucky Rare Disease Advisory Council; list members to be appointed by the Governor; state the duties of the council; require a report of council activities; create a rare disease trust fund to be administered by the Cabinet for Health and Family Services to finance the operation of the council and support rare disease research and treatment; require a report on expenditures from the fund; require the council to cease to exist on December 1, 2028, unless otherwise reestablished by the General Assembly; APPROPRIATION.

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AN ACT establishing the Kentucky Rare Disease Advisory Council and making an appropriation therefor.



2018-01-11Houseto Appropriations & Revenue (H)
2018-01-09Houseintroduced in House

Kentucky State Sources

Bill Comments