Bill Text: IL SR1408 | 2017-2018 | 100th General Assembly | Enrolled
Bill Title: Declares March 1-7, 2018 as KCNQ2 Encephalopathy Awareness Week.
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2018-03-01 - Resolution Adopted [SR1408 Detail]
Download: Illinois-2017-SR1408-Enrolled.html
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| 1 | SENATE RESOLUTION NO. 1408
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| 2 | WHEREAS, KCNQ2 Encephalopathy is a form of neonatal | ||||||
| 3 | epileptic encephalopathy, first
recognized in 2011, that | ||||||
| 4 | typically presents with seizures within the first week of life; | ||||||
| 5 | and
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| 6 | WHEREAS, The number of undiagnosed children with KCNQ2 | ||||||
| 7 | Epileptic Encephalopathy is predicted to be significantly | ||||||
| 8 | higher than the number of those currently diagnosed; and
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| 9 | WHEREAS, Diagnoses of KCNQ2 Encephalopathy can take months | ||||||
| 10 | or years and are often missed; and
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| 11 | WHEREAS, Seizures in children with KCNQ2 Encephalopathy | ||||||
| 12 | are often difficult to treat and can
lead to lifelong | ||||||
| 13 | developmental delays; and
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| 14 | WHEREAS, Children with KCNQ2 Encephalopathy are at a | ||||||
| 15 | greater risk for sudden unexpected
death in epilepsy (SUDEP); | ||||||
| 16 | and
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| 17 | WHEREAS, Physicians believe early diagnosis and proper | ||||||
| 18 | treatment can lead to better outcomes
for children with KCNQ2 | ||||||
| 19 | Encephalopathy; and
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| 1 | WHEREAS, Researchers and physicians at the Ann & Robert H. | ||||||
| 2 | Lurie Children's Hospital of Chicago
are on the forefront of | ||||||
| 3 | research and treatment of children with KCNQ2 Encephalopathy; | ||||||
| 4 | and
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| 5 | WHEREAS, The Jack Pribaz Foundation, located in Wheaton, is | ||||||
| 6 | one of the few 501(c)(3) nonprofit
organizations in the world | ||||||
| 7 | dedicated to KCNQ2 Encephalopathy research and awareness; | ||||||
| 8 | therefore, be it
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| 9 | RESOLVED, BY THE SENATE OF THE ONE HUNDREDTH GENERAL | ||||||
| 10 | ASSEMBLY OF THE STATE OF ILLINOIS, that we declare March 1-7, | ||||||
| 11 | 2018 as KCNQ2 Encephalopathy Awareness Week in the State of
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| 12 | Illinois; and be it further
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| 13 | RESOLVED, That we urge parents, physicians, and other | ||||||
| 14 | health care professionals to observe this
week by educating | ||||||
| 15 | themselves on the symptoms, diagnoses, treatment, and impact of | ||||||
| 16 | KCNQ2
Encephalopathy and to join with the Ann & Robert H. Lurie | ||||||
| 17 | Children's Hospital of Chicago and the Jack
Pribaz Foundation | ||||||
| 18 | in supporting programs of research and education; and be it | ||||||
| 19 | further
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| 20 | RESOLVED, That suitable copies of this resolution be | ||||||
| 21 | presented to the Ann & Robert H. Lurie
Children's Hospital of | ||||||
| 22 | Chicago Division of Pediatric Epilepsy and the Jack Pribaz | ||||||
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| 1 | Foundation.
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