Bill Text: IL SR0608 | 2017-2018 | 100th General Assembly | Introduced
Bill Title: Recognizes June 24, 2017 as "National Cystinuria Awareness Day" to promote awareness of Cystinuria and show support for research at the Illinois medical research centers that take an active role in the fight against Cystinuria.
Spectrum: Partisan Bill (Democrat 1-0)
Status: (Passed) 2017-06-28 - Resolution Adopted [SR0608 Detail]
Download: Illinois-2017-SR0608-Introduced.html
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1 | SENATE RESOLUTION
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2 | WHEREAS, Cystinuria occurs in individuals in which a rare | ||||||
3 | genetic
defect prevents the body from regulating amino acid
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4 | concentrations, subsequently leading to elevated levels of | ||||||
5 | cystine
and the formation of cystine stones in the kidney, | ||||||
6 | ureter, and
bladder; and
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7 | WHEREAS, The American Urological Association recognizes
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8 | Cystinuria as the most common monogenic kidney stone disorder; | ||||||
9 | and
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10 | WHEREAS, The majority of Cystinuria patients start to | ||||||
11 | suffer from
chronic cystine stone formation before the age of | ||||||
12 | 20; and
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13 | WHEREAS, Cystinuria patients often endure episodes of | ||||||
14 | debilitating
pain (typically known as renal colic), nausea, | ||||||
15 | vomiting, and
recurrent urinary tract infections; and
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16 | WHEREAS, The majority of Cystinuria patients will require | ||||||
17 | numerous
stone removal procedures and surgeries; and
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18 | WHEREAS, Studies have demonstrated Cystinuria patients | ||||||
19 | have worse
health related quality of life than the general | ||||||
20 | population,
specifically in areas of general health, bodily |
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1 | pain, and mental
health; and
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2 | WHEREAS, Cystinuria patients may suffer from life | ||||||
3 | threatening
complications, such as hypertension, renal | ||||||
4 | insufficiency, end stage
renal disease, and the need for a | ||||||
5 | kidney transplant; and
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6 | WHEREAS, The majority of Cystinuria patients forming | ||||||
7 | recurrent
stones will develop some form of chronic kidney | ||||||
8 | disease in their
lifetime; and
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9 | WHEREAS, There is no cure for Cystinuria, treatment options
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10 | significantly reduce medically necessary surgeries and some
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11 | patients can live a stone-free life; and
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12 | WHEREAS, Cystinuria can be diagnosed from analysis of a | ||||||
13 | 24-hour urine
test; and
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14 | WHEREAS, Detection may be improved by increased education | ||||||
15 | and
screening, as many patients do not receive a diagnosis | ||||||
16 | until after
enduring one or more stone episodes; and
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17 | WHEREAS, Early diagnosis is important to the long-term | ||||||
18 | management
of a Cystinuria, which can potentially limit | ||||||
19 | permanent kidney
damage and persevere maximal kidney function; | ||||||
20 | and
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1 | WHEREAS, One in every 10,000 Americans are believed to be
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2 | genetically at risk for Cystinuria; and
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3 | WHEREAS, Cystinuria has been documented as a leading risk | ||||||
4 | factor
for one of the top most common forms of kidney stones; | ||||||
5 | and
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6 | WHEREAS, Kidney stone experts cite the economic burden in | ||||||
7 | the
United States for providing care for individuals, of | ||||||
8 | working age,
with kidney stones to be $5.3 billion dollars in | ||||||
9 | the year 2000; and
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10 | WHEREAS, Doctors at Southern Illinois University's School | ||||||
11 | of
Medicine have world-leading expertise on Cystinuria; and
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12 | WHEREAS, Well-supported research funding for Cystinuria | ||||||
13 | will lead to improved screening and treatment, improved quality | ||||||
14 | of life, and expedite the development of a cure; therefore, be | ||||||
15 | it
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16 | RESOLVED, BY THE SENATE OF THE ONE HUNDREDTH GENERAL | ||||||
17 | ASSEMBLY OF THE STATE OF ILLINOIS, that we recognize June 24, | ||||||
18 | 2017 as "National Cystinuria Awareness Day" to promote | ||||||
19 | awareness of Cystinuria and show support for research at the | ||||||
20 | Illinois medical research centers that take an active role in |
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1 | the fight against Cystinuria.
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