Bill Text: IL HR0011 | 2019-2020 | 101st General Assembly | Introduced
Bill Title: Recognizes September 2019 as Dystonia Awareness Month.
Spectrum: Partisan Bill (Democrat 4-0)
Status: (Passed) 2019-04-05 - Added Co-Sponsor Rep. Barbara Hernandez [HR0011 Detail]
Download: Illinois-2019-HR0011-Introduced.html
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| 1 | HOUSE RESOLUTION
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| 2 | WHEREAS, The term Dystonia encompasses a broad group of | ||||||
| 3 | debilitating, incurable neurological conditions in which | ||||||
| 4 | scientists have not yet discovered a certain cause, making this | ||||||
| 5 | illness extremely difficult to diagnose; and
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| 6 | WHEREAS, Nearly 250,000 Americans are living with | ||||||
| 7 | dystonia, making it the third most common movement disorder, | ||||||
| 8 | following essential tremor and Parkinson's disease; and
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| 9 | WHEREAS, The onset of dystonia is typically seen in early | ||||||
| 10 | childhood, but it can also begin later in life during | ||||||
| 11 | adolescence and adulthood; it has a lifelong span; and
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| 12 | WHEREAS, Currently, there is no cure for dystonia, only | ||||||
| 13 | treatments to help ease symptoms, such as Botulinum toxin | ||||||
| 14 | injections, deep brain stimulation, or other surgeries; and
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| 15 | WHEREAS, Recently, the Dystonia Coalition, a clinical | ||||||
| 16 | research network for dystonia, has been established with | ||||||
| 17 | support from the National Institute of Neurological Disorders | ||||||
| 18 | and Stroke (NINDS) and the National Institutes of Health (NIH) | ||||||
| 19 | Office of Rare Disease Research as part of the Rare Disease | ||||||
| 20 | Clinical Research Network; and
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| 1 | WHEREAS, The Dystonia Medical Research Foundation | ||||||
| 2 | recognizes September as Dystonia Awareness Month, and a | ||||||
| 3 | nationwide effort is being made to have the White House | ||||||
| 4 | recognize September as Dystonia Awareness Month; therefore, be | ||||||
| 5 | it
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| 6 | RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE | ||||||
| 7 | HUNDRED FIRST GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that | ||||||
| 8 | we recognize September 2019 as Dystonia Awareness Month and | ||||||
| 9 | encourage research of this devastating condition in the hope | ||||||
| 10 | that someday soon a cure is found.
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