Bill Text: CT HB06009 | 2017 | General Assembly | Introduced

Connecticut House Bill 6009 (Prior Session Legislation)

Introduced

Bill Title: An Act Establishing A Rare Disease Advisory Council.

Spectrum: Partisan Bill (Democrat 1-0)

Status: (Introduced - Dead) 2017-02-17 - Public Hearing 02/22 [HB06009 Detail]

Download: Connecticut-2017-HB06009-Introduced.html


General Assembly		*Proposed Bill No. 6009*
*January Session, 2017*		LCO No. 2605
		02605
Referred to Committee on PUBLIC HEALTH
Introduced by:
REP. ROSE, 118th Dist.

AN ACT ESTABLISHING A RARE DISEASE ADVISORY COUNCIL.

Be it enacted by the Senate and House of Representatives in General Assembly convened:

That title 19a of the general statutes be amended to establish an advisory council comprised of researchers, geneticists, physicians, hospital administration and patient advocates for the purpose of making recommendations to the joint standing committee of the General Assembly having cognizance of matters relating to public health concerning the rare disease community.

Statement of Purpose:

To make recommendations on legislation concerning the rare disease community.