Bill Text: CA ACR207 | 2021-2022 | Regular Session | Chaptered
Bill Title: Sickle Cell Awareness Day.
Spectrum: Moderate Partisan Bill (Democrat 59-18-1)
Status: (Passed) 2022-08-19 - Chaptered by Secretary of State - Res. Chapter 143, Statutes of 2022. [ACR207 Detail]
Download: California-2021-ACR207-Chaptered.html
Assembly Concurrent Resolution
No. 207
CHAPTER 143
Relative to Sickle Cell Awareness Day.
[
Filed with
Secretary of State
August 19, 2022.
]
LEGISLATIVE COUNSEL'S DIGEST
ACR 207, Wilson.
Sickle Cell Awareness Day.
This measure would recognize June 19, 2022, as Sickle Cell Awareness Day in California.
Digest Key
Fiscal Committee: NOBill Text
WHEREAS, Sickle cell disease is a chronic condition that can affect any organ, including the kidneys, lungs, and spleen, and research indicates that patients experience many severe complications, including stroke, infections, and pulmonary embolism, and have a shorter life expectancy than the general population; and
WHEREAS, Vasoocclusive crises are a common painful complication of sickle cell disease in adolescents and adults that may occur several times per year, and these recurrent episodes induce severe pain, decrease quality of life, can cause life-threatening complications, including stroke, are the primary cause of hospitalizations in sickle cell disease, and are associated with increased mortality; and
WHEREAS, Vasoocclusive crises typically last several days and are the leading cause of hospitalizations of patients with sickle cell disease; and
WHEREAS, Sickle cell disease can be a life-threatening condition, leading to a 25-year to 30-year reduction in life expectancy, and access to comprehensive care can be limited by social, economic, cultural, and geographic barriers; and
WHEREAS, Individuals living with sickle cell disease encounter barriers to obtaining quality care and improving their quality of life, and these barriers include limitations in geographic access to comprehensive care, varied use of effective treatments, high reliance on emergency care and on public health programs, and the limited number of health care providers with knowledge and experience to manage and treat sickle cell disease; and
WHEREAS, Although there is no widely available cure for sickle cell disease, one-time gene therapies, including gene editing therapeutic approaches, are being developed and may offer potential cures for some patients; and
WHEREAS, One-time, potentially curative therapies for sickle cell disease may offer substantial savings over a patient’s lifetime by avoiding the cost of future health services; now, therefore, be it
Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature recognizes June 19, 2022, as Sickle Cell Awareness Day in California.
Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.
